Diagnosed and still waiting

  • 6 replies
  • 277 subscribers
  • 254 views

Hi all,

I received a letter from the hospital saying I have an Incidental micro calcification involving the left breast with an area of spicule mass. Core biopsy from mass showed Grade 2 invasive ductal cancer, ER7,PR4 HER2 negative. A biopsy from the calcifications showed LCIS B3.

so it’s been 2 weeks since my diagnosis of breast cancer, and I have to have another biopsy, which is on Friday 2nd May. Should have been last week, but hospital cancelled it at the last minute.

I’m a person that hates waiting, just want to get on with the treatment, whatever that will be. 

I suppose my worry is that because I’m a type 1 diabetic, the treatment is going to play havoc with my levels and not be able to keep it under control. I can’t talk to family about it, because there’s nothing to tell. I just have to carry on and try and stay positive.

  • Hi there, welcome to the forum, I'm one of the community champions here in this group and I'm glad you found us. This is a great place to ask questions, share concerns or simply exchange what you're going through.

    I'm sorry you find yourself in the phase that everyone hates, the waiting. It really is so difficult so you have my sympathy. Keeping positive is good, as is keeping busy, I hope you get a treatment plan soon. Best wishes 

    Community Champion badge

  • Hi NanniePeanut

    I totally understand how you feel. I got partial diagnosis after my first set of Mammograms, ultrasounds and Biospsies but as parts where inconclusive they had to do further contrast mammograms and a bubble scan and cental lymph node biopsies to get the full picture. I found the waiting the hardest part.

    My Consultant assured me the type of Breast Cancer I had was not aggressive or fast growing so the time being spent to fully understand what is going on would really help us make a clear decision on what surgery to have and prevent multiple.

    Worth checking with your breast care nurses if it's similar situation for you, it may help with the worry.

    I understand you not wanting to tell family when there's nothing to tell, I was the same. I did find it useful telling a couple of really trusted people in my life, who knew they were the only ones that knew, and who i could offload anxieties too and braindump. It helped keep me from driving myself insane on google.

    Good luck and I hope your treatmentment starts real soon PrayThumbsupxx

  • Thank you, biopsy again today. Fingers crossed not a long wait till I get a treatment plan. 

  • Thank you, it’s nice to know that I’m not alone in this. Even though I feel lost and numb all the time. 

  • You are definitely not alone in feeling lost and numb. It's overwhelming trying to process it all and carry on with normal life, that's why the waiting part is so difficult. 

    Keep messaging on here if you have no one else you feel you can share with. There will always be someone around to show support! Xx

  • Hi NanniePeanut

    Waiting is definitely the hardest part. I had a mammogram & biopsies done in December and had to wait 3 weeks (over Christmas and New Year) to find out what I was dealing with. All the clinic said was it was bc. Only my partner and a couple of others knew as I didn't want to tell anyone else until I had all the facts and treatment plan in place.

    Once you have a treatment plan, you will feel better (I know that's hard to imagine) as you'll feel more in control and have a better understanding of what's going on. As someone else suggested, perhaps speak to your bc nurse to see if they can offer any reassurance just now.

    Best of luck! Xx