Hi after being diagnosed in October 2024 with occult breast cancer with lymph node involvement I have just completed 3 rounds of E/C and 9 rounds of paclitaxel and carboplatin and I have my surgery booked in for 25th April. I have the BRAC1 gene so I am having a double mastectomy with implants and an axillary node clearance.
I have managed to focus on the treatment and found the influx of appointments helpful as it allowed me to focus just on the next step and almost create a routine with district nurse visits for my picc line and the last 9 weeks of weekly treatment. Now this has stopped I feel so different to how I was expecting to feel finishing chemotherapy.
I was expecting to feel elated at not having to go weekly and have chemo but I have found the change in routine and silence really hard. There’s no appointments apart from my surgery in the diary which feels so far away now and I am really struggling with overthinking every single thing my body is doing.
I have been really positive throughout this and want to continue this mindset but it’s really hard at the minute and I don’t really know what to do.
Any advice on managing this time or has anyone experienced the same thing?
thanks
Hayley
