Radiotherapy

Hi I'm having the same problem I've been told 6mths mth wait and I'm east mids. 

I was initially told 6 months from the op.  Now it’s 9 months from March.  I guess I’m lucky I’m not a priority but if I could go elsewhere within reasonable travel I would. If anyone knows anywhere which would accept us that would be great.  Leicester has an agreement with Stoke and Lincoln - but that’s in 9 months time at the earliest.

Like you I had my op in Dec but I had a mastectomy they removed a few nodes but it hadn't spread so I'm guessing I'm not a priority and I had it done in leicester but 9 mths does seem ridiculous x 

Hi, 

I had my licap surgery at glenfield in November, I was told it would be a six month wait for radiotherapy at an appt in February and then got a call a few weeks later to see if I could come in end of March. Currently going through a week of radiotherapy at LRI. So I’d say stick by the phone and don’t worry too much, I was technically low priority too as all dcis was taken with clear margins in my surgery. I did ask why the sudden change in schedule and Debbie said it’s just down to cancellations and who picks up the phone first. I guess as mine is only 5 fractions it was easy to fill a gap? Don’t lose heart it’ll be over soon xx 

I had my mastectomy at glenfield too I get there are more serious cases but 6 mths is so disheartening I just feel like it's another obstacle I have to overcome and then I have to decide if I want reconstruction as I am flat at the minute, I hope your radiotherapy goes well, sending love and hugs xx

Thanks for your responses and good wishes which of course I return to you all.

on advice of MacMillan nurse I contacted PALS - no reply just an acknowledgment.

I rang radiotherapy a couple of days ago.  Situation the same.  Now calling people who had op July 2024.  Contract with Stoke has finished.  There may be a contract with Nottingham in the offing.  Lincoln accepting 2 patients per week.  I queried cancellations but was told they don’t have a list for that.  They work through the waiting list and will ring several times if we don’t pick up immediately.  That was reassuring 

it’s nobody’s fault but frustrating.  We got the first bit done and now it’s a long wait.  Private treatment is prohibitive.

still looking like Autumn for me.  Felt very upset.  Now just resigned.  It could be so much worse

good luck to us all

Hi there

Still no date for me it's just a waiting game  

Good luck ladies xx