Paclitaxel aches & pains

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Hi everyone

i was glad to finish an accelerated dose of EC chemo (fortnightly) and move on to fortnightly Paclitaxel. The first 36 hours after I got home from the infusion o felt fine, in fact quite productive, did a days work and normal domestic stuff. Side initially effects were very lively bowels and a stomach ache, but all manageable compared to my last two rounds of EC!
Then on the evening of day 2 after infusion my whole lower body is aching and sore. I woke up with it in the night and my legs and hips were restless for hours. Also headache. I think the steroids have worn off!
im wondering if, aside from hard painkillers (I’m trying paracetamol and codeine and ibuprofen together), anyone had found any ways to alleviate the aches? I wondered if cold water immersion might help? 
Thanks 

Lottie 

  • Hi  chemo can be really tough, especially in the early days after the steroids.  I found that exercise, just some short and gentle walking, helped me a lot, even though it felt a bit counter intuitive. Hope the aches and pains ease soon for you. Best wishes 

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  • Thank you   exercising and staying moving has definitely helped ease it and also keep me distracted. It’s in the evenings on the sofa and sleeping that have when it really sets in.

    Updating here in case anyone else reads this thread looking for tips. At night I have been taking ibuprofen, paracetamol, codeine and antihistamine (loratadine) to help me get to sleep and that seems to knock it in to touch (this was self prescribed by the way).

    I found it passed day 5 after chemo which was a huge relief! 

  • Hi hope you’re doing okay do you have to get permission from your oncologist to take medication alongside chemo .. ?

  • I was told painkillers were fine by my nurses. I found the info about the antihistamine helping bone ache on a few different forums so that was self prescribed. 
    Of course everyone is different and should check with their chemo team if they are unsure 

  • Hi lottieWat,

    Hope your aches and pains and subsided. I am on dose dense paclitaxel after 4 EC aswell. Finding Pac way easier,  one more to go, finding the aches after each pac isn't as bad but still annoying at night time!

    I asked my nurse at my pre bloods appt and they said I could take paracetomal, ibuprofen and antihistamines. You may already be doing so but make sure you take your temperature first before taking these meds so they don't mask and infection. I do a nice wee wall twice a day which i find helps the pains aswell even if just 10 mins! 

    All the best with the rest of your chemo Revolving hearts

    Xx

  • Hi  I guess you must have had your final dose now? I hope it went OK - one more treatment hurdle ticked off!

    The aches and pains start to subside 7 days post treatment and I've also found exercise, keeping moving and hot baths have helped alleviate.

    Did you get any nerve or nail issues? So far I haven't but wondering whether to get cold gloves/booties for last two rounds as a preventative measure.