Evening all,
I had my first routine mammogram in mid-Nov (having turned 50 in Feb), was asked to go back mid-Dec as there were discrepancies and was told on Christmas Eve that I have DCIS in my left breast. By NYE, it was confirmed that I need a mastectomy which is happening this Friday.
My questions are…
The only contact I’ve had with the breast clinic has been when I’ve phoned to ask questions (silly ones, but things that bothered me! Do I need to shave my arm pit on the day of surgery? Do I need to not wear deodorant that day? Etc) - no one has called to check I’ve received confirmation re the op, if I’m happy with what’s happening, etc. Is that right??! No contact at all?? They were lovely on the day the op was confirmed but nothing since then apart from my call with my random questions!!
I’ve read on here about l different cushions - what do I need? Where do I buy them? Do I need anything special or can I just sleep in my own bed, with my regular pillows, my husband (and the dog!!)?
What about the drain? I think I was told I’d have 2? Does that make sense? Do I need to get a bag or is that provided?
Sorry if these are things that have been asked and answered already but I haven’t managed to find the answers as yet. And apologies for the waffling on - I feel like this operation has got my head all up in the air!! Xx
Hey GingerLulu, thanks for your quuestion. I'm sorry to hear that you've not had great communication from your team. Have you been allocated a Specialist Nurse?
I had a mastectomy in April 2024. My hospital is similar. I did call the MacMillan nurse helpline in my early days and they were really helpful in answering my numerous questions.
I answered another post earlier today, there may be some bits that you find relevant. The link is below:
I got my heart shape cushions here:
I had one drain but each surgeon may do things differently, I think. I used a cross body bag to put mine in. You may already have something that you can use, I didn't buy one especially.
As for sleeping, this is what I found most uncomfortable in the early days after surgery. I found lying flat really uncomfortable. I bought a wedge pillow from amazon, which helped. But next time, I'll definitely be sleeping in a reclining armchair in the early days.
Feel free to ask any more questions, I'm happy to answer and I'm sure others will too.
Wishing you the best of luck with your surgery and beyond. Peace
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