Ribociclib

  • 4 replies
  • 282 subscribers
  • 160 views

Does anyone have experience of taking Ribociclib please? I’m interested in your experience  

It’s been recommended and I’m awaiting approval from BUPA   They have refused so far, possibly because although it’s been approved by the EU, the U.K. hasn’t yet approved its use.  

A supplementary question about travel insurance. I have an annual policy with Staysure. The new drug will mean regular monitoring appointments. Staysure require me to notify them of any drugs, tests, consultations etc. I’m concerned they will refuse to continue cover if I’m still undergoing treatments. Has anyone had that experience (with any drugs not just Ribociclib)

  • Hi, ribociclib is approved for use in the UK - my consultant ultimately decided to prescribe me palbociclib instead but ribociclib is definitely being used in this country.

  • Hi, I am currently taking Ribociclib through the NHS and have been for almost a year. To begin with I had some dizziness about 30 minutes after taking it but I made sure I was sitting and eating my breakfast at that point and it soon cleared. I no longer experience the dizziness. I had nausea for a couple of days at the beginning of the cycle for two months but my cosultant prescribed anti nausea medication which helped. Overall I have had a really positive experience with the ribo. This time last year my cancer was spreading rapidly, at the moment it is dormant and there has been no new spread since I started the medication. If you need to know anything else, just let me know. 

  • Thank you. That’s reassuring. 
    interesting hear you’re receiving it on the NHS too. 

    I hope your story continues to to a positive one. 

  • Thank you. 

    I hope you get the approval soon.