Time from diagnosis to treatment

Hi Llld

Sorry you have had a diagnosis, but welcome to the forum. I had a wait of 7 weeks from diagnosis to surgery. Surgery was postponed the first time because MRI showed up another area of concern to be tested, and then a second time as there was disagreement at MDT and an expert opinion was sought. I won’t lie, this part of the whole process was the worst bit by far. I was an emotional wreck and couldn’t function, it was awful and I genuinely feel for you. I now have the benefit of hindsight and am glad that these delays happened. Although it was tough at the time I now recognise that this information gathering and testing stage was key to me having the best surgery with best possible outcomes.

I know it is difficult, but please try and trust that your team would not delay things if they thought it could place you at further risk. I hope your appointment goes ahead tomorrow and best of luck with everything. x 

Hi Llld , sorry you find yourself here, the club that none of us wanted to join. I have found this site a great place for support and shared experiences. You’re at a horrible limbo stage, waiting for things to happen, it’s really tortuous. My case was a bit different and I couldn’t have gone private so I can’t offer anything helpful re that but just wanted to pop in with a hug. Also, as you’re in London, I thought I’d mention Future Dreams House in Kings Cross. I live an hour away and have been to a few sessions there which have been really helpful. It’s specifically for those affected by breast cancer, definitely worth looking at what they have to offer. Sending love and a big virtual hug, HFxx

Thank you very much for your answer and sharing your experience Eebee!

Thank you for the suggestion HappyFeet1, and the hug!! I will check Future Dreams House for sure ️

Hi, I had a biopsy on 25th November and I still don’t know my results. I received a face to face appointment today but it’s not until 6th Jan, so another month of waiting. I’m trying to see the positive side and that if it’s something sinister then they’d see me sooner but then if it’s good news why can’t they call me or even write to me. My anxiety levels are already sky high and my sleep ( if you can call it that) is pretty much non existent. So reading your post that you had to wait 1.5 months has got me thinking the worst case scenario.

What are your thoughts ?

Hi

i don’t know if this is useful info but I was initially biopsied and told by breast surgeon it was 9/10 likely cancer in early June , saw same Breast surgeon a week later for confirmation and I think had an mri that day too. This was all nhs and couldn’t have been any better or quicker privately. I did however switch to private for the operations and treatment and was operated on 2 weeks later. I honestly don’t know if this would have been any quicker or slower on nhs. But I do know it was the same surgeon either way just maybe a nicer room and I do feel I have been able to contact them very easily at anytime. Again don’t know how that compares. But honestly do think the treatment itself is the same its maybe a bit quicker privately but I was told my breast cancer was slow growing so I don’t think they’d do anything that jeopardises you at all. It’s just the head f&ck of it 

Hi, I haven’t been given any indication what’s so ever so I’m literally in no man’s land at the moment. 

Hi Larry20 I am so sorry to hear and I hope by now there is a bit more clarity for you. I totally get the anxiety, I had none while waiting for the biopsy results as the radiologist did not think it was anything. I believed him, unfortunately 3 weeks later it turned out he was wrong. My form is aggressive and I am seeing someone today that hopefully will tell me the results of the MRI. It is another 3 weeks from diagnosis, and these ones have been pretty bad with both anxiety and sleeping, but hey I tell myself: what can I about it? At the moment I am physically ok and try to enjoy the day…I send you a big hug and hope you will have good news!

Hi c22,

did you have biopsy in your first consultation and results a week later then if I understand correctly? That is much quicker than my 3 weeks waiting..and another 3 weeks for the MRI..maybe it depends where one is located and how busy the hospital is. I am seeing if I can switch to private..

Yes biopsy was done immediately as in the same day they first saw the cancer. Results a week later given to me at meeting with breast surgeon . MRI that same day. This was all NHS. Looking back it was pretty good. Hellish at the time but NHS were brilliant.

i contacted my insurance company immediately after my diagnosis was confirmed and they took over at that point.