Dear All, I have joined this group from India. My mother (59 years old as of July 2024) has been recently diagnosed with triple positive breast cancer (Estrogen-70%, Progesterone - 15% and HER2 +ve) which has advanced into liver. I am looking forward to learn from the experiences from others.
Current treatment - TCHP Protocol (no surgery at this point given the disease has spreaded to liver)
3 weekly Phesgo (Perjeta + Herceptin) - 3 injections are done.
Chemo - Nab Pacletaxil plus Carboplatin - weekly cycles (She is given these drugs in two days and not on the same/signle day). Into her third cycle (each cycle consists of weekly chemos). She was tolerating it fine till 2 cycles but her third cycle had to be pushed by a week due to low hemoglobin/platelets/WBC. Her third cycle resumed after a delay of 8 days.
Her first PET CT full body scan is due on 10th Dec 2024. We are quite anxious.
Doctors have said that Hormone therapy will be started once the chemo cycles are done.
The information regarding this type of breast cancer is not very concrete and there are still some conflicting treatment lines that are being discussed in several forums. Hence, I thought I should create a separate discussion group on this topic.
Is there anyone in the group which is going or has gone through triple positive breast cancer? Request you to please share your experience and if the above treatment is correct or not? Or if the admins of the group can please direct me to the right forum/post?
Thanks
Hello JaiTri
I'm sorry to read your post about your mother and at such a young age too.
I only had ER+ cancer, but a month after myself, my friend got diagnosed with ER/PR+ and HER2 cancer. Hers hadn't spread though, so significantly better than your Mother's diagnosis. She went through the chemo. and then had the hormone tablets and radiotherapy. (We were both diagnosed 7 years ago). That's about all the information I can give you unfortuantely.
Are they providing any different treatment for the liver cancer? It might be worth you joining the liver cancer group (click the link) to get more information for you and your mother.
Kindest wishes to you both,
Lesley
Hi JaiTri
I'm really sorry, I don't know. I wonder if you might want to copy and paste your query and title it as "ER positive and HER2 positive breast cancer" as I've not heard of triple positive before (I might be out of date as it was a long time ago I was diagnosed). But although they put PR+ in the diagnosis (I was PR+ as well) the oncologists don't really seem to be bothered about this bit, just the ER+ bit.
It might help by changing the title to get someone else to respond to your enquiry. Alternatively, you could try ringing the helpline and see if any of the Macmillan team have more information for you. 0808 808 00 00
Kindest wishes, Lesley
