Hello
I have recently undergone a mastectomy for stage 1 IDC, my results were ER+, PR- and HER2+.
because of the HER2+ I need Herceptin which you can only have with a course of chemotherapy. It has been recommended that I have 12 weekly sessions of Paclitaxel and 3 weekly injections of Herceptin for a year. My understanding is that by having Paclitaxel weekly it builds up in your system so the first few weeks can be ok but it can be more debilitating as the weeks go on.
Have any of you had the same treatment and can you kindly advise me of what I should expect, how bad was it after a few weeks? Also can you cold cap with this treatment? I am unsure if I should be ordering a wig now or see how it goes.
I appreciate your help with this, thank you
Hi, I had a different type of chemo, but I did have 3 ekelt herceptin, initially by IV and then by injection. I had no side effects at all from the herceptin, which was really encouraging. Best wishes
Hi Molly Olive
I had a lumpectomy last December followed by Paclitaxel, Herceptin and 5 sessions of radiotherapy.
Overall, Paclitaxel wasn't as bad as I expected. I didn't have vomiting or feel nauseous although I had a metallic taste whenever I ate. My bowels were okay throughout the treatment. I had a red face and neck for a couple of days after the Paclitaxel for the first cycle, that was because of the steroid prior to having the infusion. My skin became quite dry especially on my face and I had brown marks mostly above my lips, this cleared up once treatment finished. Some of my toe nails and finger nails became purple and lifted, they are fine now and I had minor peripheral neuropathy in fingers and toes which I still have. My eyelashes and eyebrows fell out once treatment had finished, but they grew back quickly.
I was tired when having chemo and I still tire easily, the oncologist said that is quite often a result of having radiotherapy.
I kept a diary of my symptoms throughout but to be honest once it was all over I forgot much of it. I didn't find it debilitating but appreciate that people react differently to treatment.
I cold capped throughout , my hair did become much thinner and I lost quite a bit from my crown . I kept delaying getting a wig and in the end, I just wore headbands to hide the loss. My hair started regrowing whilst I was having chemo and the bare patches filled in fully about 3 months after chemo finished. I had chemo through a picc line rather than a cannula, although initially I was adamant I wasn't having a picc line it made it much easier for having bloods taken and having chemo.
Wishing you all the best with your treatment
D.D
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