Hi lovely ladies!
From reading other messages it seems very common for an axillary node clearance to be carried out if there is a positive sentinel node.
I had 3 sentinel nodes come back positive out of 5 (3 showed up as hot nodes) for a small amount of macrometastasis (don't know the size) however there was no discussion during my results, post WLN surgery, to suggest axillary node clearance any time soon. Due to the sentinel nodes being positive it's likely I will need chemo (grade 2 2cm er + her2-) unless if go for optima and that changes the plan. My letter then said recommendation from MDT is axillary clearance after chemotherapy with a question mark....
Does anyone know from their own experience why axillary clearance isn't done sooner to check from any further spread? I've had my bone scan which is clear and ct on Tuesday then oncology meeting 19th!
Thank you!! xx
I had 2 of 3 positive for macromets. Was offered clearance or radiotherapy. Apparently in most other European countries axillary clearance is no longer first line treatment. NICE clinical guidance states either option available for positive SNB. I was provided with information on trial data which shows no difference in prognosis between both treatment (10 year follow up) but less risk of lymphoedema with RT. I discussed with oncologist and we decided on15 sessions of RT - no clearance. 6 months on happy with decision.
p.s I was also told decision re surgery/RT didn’t have to be made until after chemo.
Hi Da1984
I had my treatment 2021-22. Hormone neg, her+ with 1 node out of 3 positive. I did not have clearance. I had 3 weeks of radiotherapy. It took me a while to be comfortable with the decision as most people at the time seemed to have clearance. Also my oncologist said they’d be happy if I did neither which I thought was really odd but I didn’t question him at the time.
Hopefully your oncologist will clarify when you meet them.
Best wishes x
This is really interesting, thank you so much ️
From what you've said is pretty much what my nurse said when I called her aswell.
Same with mine if I have clearance then it is discuss after chemo. Just so much info to try figure out
Thank you again and hope you're doing well! X
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