Hi. Thought I'd share my experience in case it might help others.
I was diagnosed 3 years ago and after 10 months of treatment (wide excision, chemo, cavity shave, radio) I was offered abemaciclib.
My white cells dropped after the first month so I went from 150mg to 100mg. I had a few mild bowel effects for the first 3 to 4 months mainly urgency but it settled and all was fine till 18mths later when i got awful headaches. I had a break of 3 weeks and went on to 50mg and the headaches resolved. (I've known finished the 2 yrs).
I had anastrozole initially and had a few joint pains for a couple of months which then settled. After 2 years the joint pains flared up. I couldn't sleep with the pain in my hands and could hardly write with the pain in my wrist. I had a 5 week break and went on to examestane. Amazing. My joint pains have gone and I feel fab.
3 years on my recent mammogram was fine.
Hopefully all will be well now. I wish you all well. Keep on with the treatments its a slog but you will get there. Adjustments can help if you are struggling.
All the best xx
Hi Bobbiboo welcome to the forum and thank you so much for sharing your story to help others, that is a really lovely thing to do and will be, I'm sure, of help to many others.
Sending very best wishes your way for your ongoing good health. xx
gail
