Wound opened up after lumpectomy

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I posted earlier this week with regards to a seroma that wouldn't stop leaking and now my wound has opened up. Infact there are two holes in it - one about a 1cm and another smaller one. I can see right into the tissue below and it is completely freaking me out! The nurses have checked it a few times and reassured me that it's totally fine and not to worry as there are no signs of infection and I have an appointment in 10 days time to get it stitched up (I think they want to leave it to try and settle and stop leaking before stitching again) But until then I have a wound management bag over it collecting the fluid. Has anybody else had this and can reassure me that it is normal?? Every time I do my exercises I think I'm opening it even more and so paranoid that it's going to completely burst open! Its really getting me down as just thought I'd be healed by now nearly 1 month post surgery! 

  • Oh gosh that does sound both frustrating and I'm not surprised you are worried. I haven't had the same but I just wanted to say that I hope it improves for you and I'd suggest popping to see your GP, or the nurses at the surgery, if it continues to bother you,  or gets any worse, best wishes 

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  • Hi,  after lumpectomy I noticed a small hole in the scar, looked like 4mm,the bc referred me to community nurse team who dressed it until it healed after a few weeks.  They used medical grade manuka honey.  was a shock to see it, so understand what you mean x

  • Oww  I am sorry to read that this has happened you must be beside yourself with worry.

    I know a few of the Fruit Loops as they are called in the 'AWAKE' thread have had this type of dressing.  To be honest when I was first reading your post I was thinking that that type of wound covering would possibly be ideal (I'm not medical its what I have picked up from the other ladies).  

    Therefore, I believe you are having the right treatment, like you say in hope it all settles down and can avoid been (re)stitched.

    I am wracking my brain on who it was that had one of these ..... I'm not sure if it was  - Northerner did you have this kind of dressing..... can you remember who it was??

    I know that  will be familiar with this type of dressing and will be able to offer you some advice or reassurance.

    I can remember when my body started to reject an internal stitch!! I had no idea what was going on.... all I could see was a type of plastic wire (like I imagine fishing wire to be like) starting to come out of the end of my operation site .... I had know idea, it was getting a little longer each day (it wasn't massive - I'm only talking millimetres... apparently this can be normal (gulp).

    For you however to be seeing this especially after the operation etc it will be only natural to be worried - please get it checked out and watch for signs of infection, these can include 'redness around the area' and also if the 'wound becomes very warm'. I would also say keep the area dry.

    I am sure other ladies will come here to let you know their thoughts and hopefully give you some reassure you xx

    I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x
  • Thank you so much for your reply! Hopefully one of the other ladies will get in touch. My breast cancer nurses have been lovely and have tried their very best to reassure me it's ok but I think psychologically it would help to know others have went through this. I have been watching carefully for signs of infection (when I can bear to look at it!) and so far it's ok. 

  • Owww don't talk about "when you can bear to look" .....  
    I was the same, I ignored looking at myself for weeks if not months - when I did look I told myself it is what it is and tried not to focus or think about it.   I will add with each week and month that goes by as your body is healing it also tries to fill in the spaces inside (I had a very obvious 'triangle' shape under my skin - it looked like the top point of an iron' I really didn't think this would go..... it has!!

    If you feel you want to talk any time day or night there is a Thread called 'AWAKE' we all seem to go there to chat and catch up, ask questions, have a moan and even a laugh, I'll link it below and you can always come in there and ask the question (as the lady I am thinking of is in this thread).

    https://community.macmillan.org.uk/cancer_types/breast-cancer-forum/f/general/128753/awake/2078753

    I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x
  • I had a wide local excision lumpectomy and symmetrising breast reduction at the end of June. My recovery felt very long and arduous as I developed an infection and seroma.  Like you I was hugely scared of what I could see and the leaks I had to deal with.
    I made weekly visits to the plastic surgery clinic who reassured me my symptoms were normal. I was given a variety of different dressings at different stages of healing. I was advised to increase protein in my diet and I also took some prescribed homeopathic remedies too. 
    All in all my wounds took until towards the end of August to fully heal. I went through weeks of fear and anxiety and feeling grubby as I needed so many dressings and had to wear post surgery bras etc. However, there is light at the end of the tunnel. I did fully heal (and nicely too). And I was able to begin my chemo treatments.  I hope my experience gives you hope. I know I felt isolated and hopeless but my nursing team were very supportive and ultimately absolutely right that I would get there! I’m sure you will too! Very best of luck x

  • Oh my goodness, thanks so much for your reply! This has really helped reassure me it will be ok. My nurses have been amazing but it helps to talk to someone who has experienced it! Not long till I get it stitched up again now and just praying it doesn't open up again. Thanks so much again!

  • I’m so glad hearing my experience helped. There were times I really didn’t think I’d get there so you have my full sympathy. I wish you very well with your healing and please reach out any time! Best wishes