More diagnosis

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I have written about my cancer story before when I told about my husband being diagnosed with terminal stomach cancer in  February 22 and me diagnosed with breast cancer in the June. I had a mastectomy and was told there was no sign of cancer about a year later. My husband died 10 months after his diagnosis. I coped well with my cancer as I was so concerned about my husband and how he suffered at the end. He was a very strong man who liked to be in control of his life. His last few weeks were so undignified and humiliating for him and I know he hated me and our children seeing him like this. 
Now after being referred to a pain management clinic after suffering pains just about everywhere, including back and knees. Following lots of scans I have just received a letter saying that I have highly suspicious mets on vertebrae two suspicious lesions in  sternum and acetabulum on left hip. They are other tiny nodules on pleura left and right lobe areas which not commented about suggestive of mets. 
I am 84 and can accept dying but what I am so very anxious about is that I become helpless and lose all my dignity relying on my son and daughter so that they have to go through it all again  18 months after my husband. I know they willingly will look after me but I really , really don’t want them and my grandchildren to have to see me as this hopeless , helpless old lady. I am sure this is not sounding good but it is how I feel. My daughter is away on holiday and she does not know about the last diagnosis and I am dreading telling her. My son lives a long way away and offered to come straight away I told him to wait as I may need him later as at the moment apart from being emotional I am ok. I wonder if others have just received letter telling the news.. I wonder if it would have been better to hear it face to face and accompanied by my daughter. 

  • I’m so sorry you are going through this

    how odd that they would choose to impart this information by letter. Can you possibly call your referring doctor as maybe they can explain what’s going on.

    i don’t need to tell you how this works - but they are not telling you that you have cancer. So try not to go there yet…… totally natural that you should though especially after all you have been through

    definately put a call in to whoever sent you the letter or to your GP?? Hopefully they will clarify and put your mind at rest.

    let us know . You aren’t alone  

  • Thank you for your response. My daughter is home now and is really upset that I am upset and has contacted the oncologists secretary and he is on holiday for two weeks and I am not on the list for a multidisciplinary discussion for September so who knows what will happen and how long I will have to wait for a meeting to discuss my case. My son and daughter are putting in a complaint to PALS (patient advice and Liaison Service) I will also contact the GP as you suggested. I just want them to know the impact receiving the letters with all the details about my scans when I was alone had on me . xxxx

    Coral 

  • Hello, I agree with C22 that this is a very odd way of relaying this information to you. Whilst waiting for your GP or hospital to get back, you could also ring the free MacMillan helpline (0808 808 00 00) for clinical advice and support. I have done this, and I spoke to a senior breast care nurse. She discussed my results with me and put a lot of ‘meat on the bones’ so to speak. My team were very good, but they didn’t have the time to tell me everything. The MacMillan nurse was  informative, calm and accommodating. They give you the time that you need, and you can ask anything. I think they are open 8am - 8pm. Whilst you still need to speak to your hospital and oncologist etc, speaking to a MacMillan professional could be useful in the interim. 

  • Thank you. I will contact the MacMillan nurses tomorrow. Why didn’t I think of that?  I go to yoga and relaxation classes at the MacMillan centre at the hospital and have had a lot of help from them in many ways. I think I was so floored by the letters( I had two ) that I didn’t think straight. XX 

    Coral