Diagnosed with invasive lobular breast cancer advice please

It can be yes depending on how busy the chemo unit is.

I’’ve been given the all clear but I’m still on treatment. I’m on Anastrozole which is an anti-hormone drug as my cancer was ER Positive for five years and I will be having  Zoledronic acid infusions every six months for about three years.

If you feel up to it why not do something nice for yourself to try to take you mind off what’s ahead for you.

Best wishes

Daisy53

Hi Redc

Sorry you are feeling out of control and that you didn’t get  the news you were hoping for.

Best of luck with your oncotype DX results.

Best wishes

Daisy53

I'm so sorry to hear that. I'd really hoped you'd have a similar experience to mine - obviously, you're going to have more of a roller coaster.

I met quite a few ladies having chemo through a group called "Look good, feel better." They were positive and strong. It just takes a while to get your head to that place. Look the group up. As well as a free day long pamper session and lots of very nice goodies, you'll meet other local ladies going through what you are. It is a scary journey but you can do it. Sending hugs. Claire x

Hope this post helps you...... 

As you know I've been waiting for my  results for 3 weeks to see if I need Chemo and have spiralled a few times over thinking etc but my results came back and I don't need it.

I cried a lot after getting my results but hadn't cried beforehand.... I hadn't realise how much of a toll the waiting and the journey itself takes. 

Sending positive thoughts x

I’m so pleased for you 

the waiting is the pits

so many mind games

angee at what point did they decide to Oncotype for you ? Came as a surprise to me but then so did the positive node!

I was diagnosed with lobular breast cancer last year following a routine mammogram. I had three cancers is two breasts.

I wasn’t prepared to have a double mastectomy as I had to make the decision quickly due to the diagnosis. My surgeon was wonderful and we elected for a double mammaplasty and lymph node removal. The worst side was sent to America for testing to see if I would benefit from chemotherapy. Last April I was admitted into hospital for surgery. I came home the same day with lots of dressings in place which were connected to batteries to gently encourage blood into the tissues. I healed very well and has symmetrical smaller breasts.

i then heard that it had spread to 2 lymph nodes, statistically it would not make any difference to my prognosis if I had the rest of my lymph nodes removed so I didn’t have it done.

i then had six rounds of chemotherapy, lost most of my hair, got sepsis but got through it. In October I had five sessions of radiotherapy ( which was ok).

I am on letrazole for ten years and the acid tablets for three years for my bones.

i am still having dental problems but hopefully these will get sorted.

so so 17 months after diagnosis I have a lovely head of hair which is curly, new firm breasts and a determination to live my best life.

I recently bought a motorhome and took a course on how to drive it. Last week end I drove to wales on my own!! I would not have done this before but after staring cancer in the face you can do anything.

good luck with your journey. You are a lot stronger than you ever imagined 

Wow what a story. What an inspiration you are. Honestly feels like you have embodied making cancer change your life for the better. Not that I’m sure you ever would have chosen this path.

I’m trying not to feel terrified but failing a bit at the moment. I just need to get through it……. I think it’s definitely the chemo that filling me with fear.

thankyou for this amazing response 

so I’m need of the positive and I promise to play it forward one day 

We have had our motorhome 8 years, I had never driven it.

8 days after my Dr's referral I drove it, albeit the long way around. Hubby was at work and knew nothing about it until I sent him a text to say meet me at the marina. 

8 days after my tests and being told I had BC I drove her again this time I drove through our village and picked him up from work.

I just thought if I'm going have to put my big girl pants on to beat cancer, I can also beat the fear of driving that big scary thing sat on the driveway.

Wales is beautiful, I'm lucky to have moved there x

When I was told I needed chemotherapy I had a complete breakdown. The McMillan workers took me into a room and calmed me down. The chemotherapy is doable like others have said.

The nurses are brilliant and it is useful talking to all the others while you are having it.

everyone understands and have great advice about wigs, clothes food etc.

i decided that it was going to take a year out of my life to give me hopefully a lot more.

We are not being brave we are doing what we have to do.

any questions please feel free to ask.

sending hugs

Well done.

Before cancer I was frightened to drive my husband’s estate car!!!