Hi Everyone
I'm new and haven't posted before. I was diagnosed with Invasive Lobular Carcinoma in January this year, after months of going to my GP and hospital. I was persistent that the changes in my breast were not normal for me but kept being told it was nothing. So when I was actually given a biopsy and diagnosed I was so shocked. Within a week I'd had a mastectomy and axillary lymph node clearance as it had spread to 22 of 24 lymph nodes. I have had 4 rounds of EC & About to start 4 rounds of Paclitaxol. The side effects of EC for me have been awful including neutropenic sepsis and a weeks hospital stay. I am struggling mentally and physically with the treatment and just wondered if I'm alone in feeling like this, am I'm not strong enough. The thought of another 4 chemo and the prospect of more horrible side effects is really getting me down. I know I have to keep going but it feels so hard. I'm 46 with 2 children aged 10 & 8.
Gosh, you've had a really tough time - welcome to this forum, there's great support here. I'm supporting my daughter who is your age and was diagnosed a year ago. She also had awful side effects with EC. Now post two surgeries, a further year of chemo just started and 15 rounds of radiotherapy starting in a couple of weeks.
It's such a horrible disease and so challenging mentally and physically. I hope you have family and friends to support you. Keep posting, this forum is such a great support. Sending strength and a big hug. xx
Cherry2 thank you so much for replying and I'm sorry to hear your daughter is going through this too. It's such a cruel disease isn't it. I don't know why I'm at such a low point as I try my best to be positive. I'm going to try and pick myself up again and carry on. I have wonderful friends abd family but sometimes it hard to tell them how I really feel as I don't like to upset them. Thank you again for your kind reply and I wish your daughter well with the rest of her treatment. X
RKD thank you for replying. I hope my message hasn't made you worry about side effects- I hope for you that the side effects are minimal. I think as my surgery was so sudden, I'd pushed all my feelings down and its only know I'm realising I should've allowed myself time to process everything. I wish you well with your treatment and if you feel like it please let me know how you get on. X
My recovery after the op was OK I had a seroma but the nurses drained it a couple of times so it wasn't too bad. I still have numbness under my arm and just above the elbow but hopefully that might improve. I'd I can just get my final 4 chemo over with - not saying I'm looking forward to 15 sessions of Radiotherapy but I'm think it's got to be easier than chemo
I hear you. I was diagnosed in January also, had a mastectomy and lymph node clearance (11 out of 14) grade 3 IDC. Just had my 3rd round of EC and the. For 9 weeks of Paclitaxol, and although I know it’s happening and I know I’ll do it ( just like you) doesn’t mean I want too! Tired is not an accurate description, is it?
I’m sorry that your side effects have been so harsh, I don’t know if this is any consolation but I spoke to my consultant the other day about the worry/fear of 9 weekly cycles when it takes me a good 8-10 days to feel more human on EC and she said a lot of people find pacitaxol so much easier- so I’m holding on to that.
I 40 and although my babies are older at 16 and 19 (still my babies) I have the fear of making them more grown up than they should be. I don’t have any words to make you feel better, but I’m hoping that if you read that I feel those feelings just like you, might offer some support.
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