Lymphoedema query

Hi, lymphedema is so frustrating and uncomfortable.  I would suggest to give the lovely folks at the Macmillan helpline a call. They are open 8am to 8 pm daily on 0800 808 0000 and they might be able to suggest some exercises or give you some advice whilst you're waiting. Best wishes 

Hi SDee, I have lymphoedema in my left arm and wear a sleeve and glove every day. Until your appointment I would suggest not lifting anything heavier than half a kettle full of water with that arm. Avoid repetitive movements like sweeping up etc and keep it raised with cushions if you are sitting down for long periods. That will help to stop it getting worse. Good luck and hopefully you will have answers and help soon.

Thank you so much! I will do that x 

Thank you for your message x 

I had lymphedema in my right arm and wore a sleeve for a long time. My ETA became proficient at putting it on. I couldn't do it myself and not over damp skin. 

After a while it went. I'm not sure if I learnt how to handle it and what to avoid or my body adjusted. Repeated actions that made it flare up were making Christmas cards with my class , so not heavy lifting.

The lymphedema nurses were great and very supportive and helpful.

You can handle it.

Hey, sorry to hear you're having a flare up. I've had issues since my surgery 18 months ago and wear compression garments day and night.

I've noticed the swelling is a lot worse in the heat waves, so that might have made yours more problematic too. 

The NHS website has some good self massage videos that you could try whilst you wait for your appointment. My therapist promotes movement, gentle massage (up the arm), and moisturising. 

I doubt you'll make it worse, but probably best not to use a sleeve you've not needed in a while, in case the sizing is wrong now.

Hope your appointment comes through quickly and that you feel better soon.

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