I went back today for my results of the MRI and the testing of the biopsy which was grade 2 invasive ductal carcinoma with lobular features. So the MRI showed that basically my whole right breast is tumour, the neat little 1.2cm ductal was just along for the ride. Surgeon thinks almost certainly invasive lobular as hasn’t shown on mammogram or US or clinically. Also found something very tiny in the left breast. So more biopsies on both sides. Somehow the lymph on both sides are still appearing normal both on the MRI and today’s US. Definitely will need a full mastectomy on the Right. Very likely chemo as well. Surgeon off on holidays so referred me to his colleague who I will see next week. We are both reeling from this news.
My feeling is that I want a double mastectomy as I have larger boobs and I do not want to be lopsided - not for how it looks but because I think it will throw out my back and neck. Also if I go for double then I can have flat days and bra days. But if single will still always have to wear a bra.
I do not believe that it isn’t in my lymph - but they are pretty sure that what’s going on in the left is nothing to do with the two tumours on the right.
Terrified, really fed up and dreading making the decision and absolutely terrified of having chemo. What a totally shitty day. Actually no, not totally shitty, everyone was totally lovely and we are lucky enough to have a maggies centre who gave us a cup of tea and mopped us up.
I had very large boobs 38 j/k. They initially refused a double mastectomy but offered a reduction on remaining breast however after various letters MP etc and because it was COVID I got the double. I hardly ever bother with prothesis except when doing water aerobics BUT I am mid 70s if I was younger I might. Can you have reconstruction? I was denied this because of high BMI x
Hi Rozalia thanks for your reply. i’m 64 and yes they have offered reconstruction but not sure I am that bothered either. Thought of not needing a mammogram ever again also rather nice. At the moment I feel like I want them both gone as soon as possible but will see how I feel by time I meet the surgeon.
It is probably illogical but as I don't have mammograms I feel I am never getting any follow up checks which given all the aches and pains that I assume can be attributed to the aromatase inhibitors I am always wondering has it perhaps come back somewhere else. Just a thought. X
Hi, I just read your post and wanted to say hello. What crappy news for you but glad you've found the support of Maggies and this forum. Do pop in here any time and feel free to post any questions or just to rant. The lovely folks at Macmillan are also just at the end of the phone (0800 808 0000) if you need any advice. Best wishes
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