Hi everyone.
i was diagnosed with bilateral lobular breast cancer 28/022023.
To say it was a shock is an understatement.
just to let you all know how I am one year on. I had surgery on both breasts 3/4/2023. I was absolutely terrified.
i was only in for day surgery. I had mammaplasty on both breasts because I had enough tissue to do this. I was offered bi lateral mastectomy but this was too frightening for me to consider if there was an alternative.
in we were hoping that I would get away with surgery and radiation but the cancer had spread to 2 lymph nodes. I had samples sent to America and the score came back that I would benifit from chemotherapy. I was gutted. I had six sessions of chemotherapy one every three weeks, the first 3 were ok the last 3 very hard, I got sepsis and spent some time in hospital.
i cold capped for all of my sessions but I did lose about 80% of my hair. I lost it all on my scalp but retained a ring of hair around my hairline. The style similar to a monk!!!
I mainly used bandannas and scarfs as they were easy to wear. I got a lovely wig from Amazon which I wore for special occasions.
i have had to have several teeth removed because I will not be able to have major dental surgery due to ongoing treatments.
i am going to be on letrazole for the next 10 years. So far so good but I am suffering from aching joints and stiffness. I will also going on biphosphonates for my bones but this hasn’t started yet.
i was partnered up with “someone like you” through Brest Cancer Now, which was really helpful.
The radiology was in November for 6 sessions, this was ok. No where near a frightening as chemotherapy.
So I asked my surgeon at the end of treatment if I was cancer clear and she said that we had done everything that we could so I was.
i will have yearly mammograms for the next 5years. Fingers crossed.
my hair has started to grow back. It is pure silver and short but in need of a cut, I am so grateful to have hair again!
During my treatment I separated from my husband because he wasn’t being very supportive and I didn’t want to spend my last few years in that relationship.
we are slowly building out relationship back but I am not standing for the shit I used to put up with as I realised that I wanted to enjoy the rest of my life.
i hope this story will give hope to anyone recently diagnosed that there is light at the end of this very dark tunnel.
I realise that I may be back in this forum as I have already had three separate cancers but at the moment life is good.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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