DCIS and postmenopausal bleeding

Would still love to hear from anyone with similar experience.  Update is that my GP has advised me to stop my progesterone as well as my oestrogen.  And made a referral on a two week wait for an transvaginal ultrasound to see how my womb lining is looking.  Yet another appointment but feels reassuring to have that info before going into hormone therapy.

Hi Lolac , sorry I haven’t had quite your experience but replying will keep your post near the top and hopefully someone with relevant experience will pop in. Wanted to add my support and my slightly similar experience. Prior to getting breast cancer at 59, I had a history of growing unwanted lumps and bumps in breasts and womb. I had several uterine polyps removed, pre menopause. Thankfully they were all benign, but worrying each time in case they weren’t, or in case my bleeding in between periods had a more sinister cause. I also had a breast fibroadenoma removed, which apparently looked ‘very suspicious’ on ultrasound but thankfully turned out to be benign once removed. Nowadays I think the machines are more accurate and these are diagnosed without having to have a lumpectomy. I have also had breast cysts. Re hormone therapy and womb cancer, I think (but I’m not a medic) that this only applies to tamoxifen? I’m on Anastrozole, which is an aromatase inhibitor and works differently to tamoxifen. I’ve not read that it can increase risk of womb cancer. It’s mainly used I think for post menopausal folk like me, but I think it can be used alongside treatments to shut down the ovaries, in pre menopausal people. I’m not sure which group you’re in but I would have thought that your oncologist will take into account your medical history when discussing which hormone therapy you should have. 
Glad they are being thorough and referring you for the ultrasound to check the womb lining. I had one a couple of years ago when I had some spotting (and lots during my polyps production phase!) It was considered unusual as I’m well post menopausal and any spotting from hormone therapy usually occurs early on, while I’d been on it for 2 years by then. I got the ultrasound appointment within days so don’t be alarmed if it happens quickly! I think they try to fill all slots these days so I guess they had a cancellation. Nothing was evident on the ultrasound so it remains a mystery and thankfully hasn’t happened again. They’re not the nicest of procedures but definitely good to be checked out. Sorry for the long ramble! Love and hugs, HFxx

I’ve just seen the title of your post…. Clearly you are post menopausal. Sorry I’m quite dim witted these days!! So I’d say likely that your hormone therapy could be Anastrozole like me, or letrozole which is similar. Xx

Thanks so much for replying to me Happyfeet1.   Good to hear that it is unlikely I will be on tamoxifen.  Had my ultrasound and as my endometrium is still thicker than it should be  I've been referred back to gyny on a to two week pathway.  Am not overly concerned - just pleased it's being checked out. Am learning to expect the unexpected on this cancer journey.  Since mh first post the third biopsy found more DCIS - this time high grade snd covering an area of 8cm.  So it will be a mastectomy and have just been left to think about reconstruction options.