Hey everyone, I'm just looking for a bit of positivity and other people's stories, as you guys are always the best at that. My wife finally completed a year's worth of chemotherapy, and then she underwent surgery. Unfortunately, during the surgery, the surgeon discovered a tumor the size of a thumb in her subclavicular nodes. Now, she's been told she'll need radiotherapy and more chemotherapy. They couldn't remove the new tumor because it's connected to the main blood artery.
What's everyone's experience been with radiotherapy? Will it make a difference? How bad is her situation? Is there still hope? We were absolutely gutted to hear that she still has cancer left after the surgery. It's not a nice feeling. I'm really struggling to get us both into fight mode. Thanks for any responses. I always appreciate them, even if I don't always get back to everyone. I do read them.
Hi, I’m sorry to read your post. This must feel like a very challenging time for you both. I was not in your wife’s situation, but I did have 15 sessions of radiotherapy to the subclavicular nodes, as an insurance, I guess. This was in addition to radiotherapy to the chest wall (I had a mastectomy) and the axillary area. As part of a trial, I also had radiotherapy to the sternum. So I had quite a bit. I found it easier than chemotherapy (which I had before surgery). I did get a bit sore on the chest wall, and very itchy for a couple of days, but they can give you cream for that, and it did work. A few weeks after radiotherapy, I was struck down with fatigue, and this is to be expected. It didn’t last long - certainly not like chemotherapy tiredness.
With respect to prognosis, I would discuss this with the radiotherapy consultant, who your wife will see before she has her planning scan (this is where they take measurements so that they can plan where to zap you). What I didnt realise was that the radiotherapy consultant is a specialist in radio- oncology. My consultant was really knowledgeable about oncology and explained a lot. She put some ‘meat on the bones’ if you get what I mean. All of my team was excellent, but she explained scan results, the role of adjuvant hormone therapy (which I started before radiotherapy - so she was keeping an eye on me). I think it’s because her treatment plan was partly based on everything that had happened before, and the outcomes of that. I am sure that your wife’s consultant will explain the role of the radiotherapy for the sub-clavicular area. I’m sorry I can’t be of anymore help. Hopefully someone else will come on with some more experience in this area.
Hi Mr Power, I'm so sorry you find yourself in this position. It's still very new, you will dig deep and you will find the strength you need to support your wife in the fight against this horrible disease.
I'm currently supporting my daughter. Radiotherapy is still to come, so I have no experience yet, just wanted to wish you and your wife well. Sending love and strength. x
Hi, I don’t know much about this subject but I had cancer in 2 lymph nodes from the sentinel node biopsy and I was offered radiotherapy or lymph node clearance for the rest of my nodes so I guess it must be as good. I’m sure the clinical oncologist will explain everything to you.
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