Cancer now in my pelvis too, no surgery, more waiting

Hi Tandy6, so sorry to hear this. Don’t torture yourself with ifs, buts and maybes…..the main thing is you went and you’ve caught it. My understanding is that cancer in the bone is not curable but it is very treatable. From what I understand they treat the secondary not primary once it’s spread, which is why they won’t perform surgery. There is a secondary bc forum - the people on there will be able to tell you what to expect. We all wish we weren’t in this position - but we have to find a living with the hand that we’ve been dealt. You will find the strength to handle this - I’m sure. I’m sending you a massive hug xxxxx

Hi, I’ve replied as you posted this at 5am. This is a horrible time, and most of us have gone through the what ifs. The oncologist will have seen this sort of thing many times. Nowadays they have so many treatments at their fingertips, and he or she will know what to do. Trying to stay positive and get on with your day is emotionally and physically exhausting. Do you think it might be useful to talk to someone at MacMillan? I did this at the beginning, and they did help to calm me down. They have medical advisors too. It’s a free phone number and they are open at 8am today (08082397565) . I found that they added more detail to what my medical team told me. I had a brilliant team, but often you have questions when you get home. Xx

Thank you, my breast cancer nurse said she would call me early next week actually so I'll try and remember to jot down some questions to ask. I have some fantastic friends who I'll be seeing later too, so that will help I'm sure. X

Thank you, I'll check out that other forum and the Insta page. It's that word, 'incurable' that just sounds so scary. Xx

I know it must sound scary and it’ll take time to process. but many women achieve NED status - No evidence of Disease - which effectively means they can’t see anymore cancer. they have targeted treatments now that help to keep the disease stable for years. Glad to hear you’ve got friends around you - I’m sending you tons of love - you’ve got this xxxx

Hi Tandy6 , lovely replies already but wanted to add a big hug from me. Great idea to contact the MacMillan helpline if you want to speak to someone this weekend. There’s also an Ask a Nurse section here. I’m sure others will pop in with other experiences but just wanted to add that I’ve read of many folk here who didn’t have surgery initially, but started with chemo or other treatments. But you definitely need a full explanation from the medics. There are also many people on the forum with cancer that has spread, but who are ‘living with it’, there are so many treatments now that seem to be able to keep things stable even if they can’t offer a ‘cure’. 
Hope you can get your oncology appointment very soon, sending love and hugs, HFxxx