Tamoxifen and radiotherapy - any advice?

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Hi,

Finally got results back from my lumpectomy and it's good news from a surgery perspective, clear margins and lymph nodes ok. Feeling very relieved!

Told that the next stages are to start tamoxifen soon, and then radiotherapy will start in the new year. Any tips or advice from anyone on a similar pathway? I'm just starting to feel a bit more like me again after the lumpectomy and now feeling anxious about managing the side effects of the next treatments. I'm still quite a few years off reaching menopause as well.

Thanks

  • Hi   great news the op was a success! I’ve been on tamoxifen for about 6 months now and the hot flushes were awful at first but have since got a lot better. I was also a way off menopause but can’t say I miss having periods! Everyone seems to get different symptoms but you will need to give it a few months for the hormones to get used to it all. I haven’t had any other issues so far. 

    with regard to radiotherapy, I had 10 sessions. It doesn’t hurt but did make me a bit tired. I just got fed up with having to go to hospital everyday! 

    good luck with your treatment! 

  • Hello, I’ve been on Tamoxifen for about 8 months and haven’t experienced any menopause symptoms thankfully. 
    I had 5 sessions of radiotherapy and experienced bad fatigue for some months afterwards. The radiotherapy itself was painless. 

  • I’m three years on from diagnosis. I had some initial side effects (fatigue mainly) from both radiotherapy and tamoxifen, but they were manageable. I returned to full time teaching and family life quite soon after radiotherapy and looking back, I wish I had taken a bit longer to fully recover. Tamoxifen will likely accelerate the menopause but my view is ..hey it’s not cancer! I now struggle with a bit of pain in my rib cage, told this is a probable side effect from radiation but other than that I’m leading a full and normal life. Good luck x

  • Thanks everyone. I know everyone's experience will be different but it's really helpful to hear what you have had to deal with and that things seemed to get a bit easier with time. Hope you all continue to do ok xx

  • anyone with larger than usual breasts have advice i was told more likely to have effects.

    i was also told mepetil film can help with burns, a film u leave on for whole treatment

  • Hi, my breast size is 38FF, I was a bit sore for a few weeks after my lumpectomy. My breast after radiotherapy was ok, the only problem I had was a relatively sore nipple as it got burnt, a bit like sunburn, but bearable.

    I moisturised twice a day with Aveeno unscented, this was recommended by my BC nurse and worked well. I also used Aloe Vera gel occasionally too. Hope this helps Slight smile

  • thank you, he stressed me out 

  • As of having BC isn’t stressful enough. Good luck on your journey Slight smile

  • Hi. I was in same position back in March, though I am post-menopause. I think I would ask as much as possible about the likely benefits of the treatments for you. Unfortunately, I have been in increasing pain/tenderness/damaged skin since having radiotherapy in May. However, I have a friend who didn't have any problems. We're all different, I guess. I didn't ask how much benefit I wld be likely to gain from radiotherapy & I really wish I had. On the other hand, when I was recommended an AI, I queried this because I have various joint issues & was told, ok, tamoxifen instead. When I queried that, I was told if you don't get on with tamoxifen, we can consider stopping it as benefit small. Tamoxifen has been ok so far. Everything I was offered was in accordance with NICE guidelines but at the end of the day, I feel that what is best for you depends on your particular situation - cancer stage, overall health, your age, personal situation & what level of recurrence risk you would feel 'comfortable' with.