Unpleasant sensation post mx

Hi,

I'm sorry you're having a distressing time. I'm almost 4 weeks post mastectomy and axillary node clearance. I had horrible burning pain to my upper arm for about 10 days, before it settled - started about day 10. I found resting my arm on a pillow helped, as did keeping going with the arm exercises after paracetamol. It's settled now, but I still have pain in some places down my arm when touched - using paracetamol and again, I've found keeping my arm supported at night has helped. I've also got a sleeve from amazon to try, but this might be making the axillary swelling worse if I  wear it too long. My mastectomy site is numb, as is some of my upper arm -I'm told this is permanent. 

I hope things settle for you soon. There are so many strange sensations, it's hard to know what is normal and not, even with being told what to expect.

I had something like that - it’s a wierd burnt prickly over reaction to touch. Called dysaesthesia. I did find it settled down with time, though took a few months. Hope yours settles soon too. 

you could try light compression like a stretchy camisole, not sure if ot is feasible but would stop things brushing against the area and may provide some relief, when my arm was bugging me i wore a sleeve on my arm it helped a lot

I had exactly the same thing! I couldn't bear anything touching my skin. It was a sort of sore extreme itching. I used the heart shaped pillow we were given to hold my clothes away from my skin, a bit like a tent. It helped a lot at night and when I was at home. Going out was more tricky as the tent wasn't a good look! I couldn't wear any sort of bra so just wore a loose shirt, which I could tolerate for a short outing. I do remember feeling pretty desperate but the good news is that it did go away.  I think it had completely gone by 6 weeks post mastectomy. So there is light at the end of the tunnel!

Thank you everyone for all your responses and support xx