Tamoxifen joint pain nightmare

Hi all,

I have been taking tamoxifen now for about 3 months these appear to be not treating me well at all on the joint pain side of things I get out of bed like an 80 year old woman on a morning with bad knee and back pain but my main concern is my hands my thumbs feel like they are broken at times, I struggle to bend my fingers and I'm now to the point of struggling to pick things up has anyone else experienced this?! I have an oncology review call next week as they are already aware this started when I began the medication I'm wondering is there any alternatives anyone has tried instead of tamoxifen as I'm 44 years old my breast cancer was ER+ and premenopausal as far as I know but haven't had a period since may when chemo stopped them or is all the other meds for post menopausal? Any advice would be much appreciated!

  • Hi lumpy

    Sorry to hear you are having problems. I have the same symptoms and was told by my oncologist to ask my chemist to try a different brand. Try speaking to your oncologist see if they can change the brand. Hope this helped. 

  • Hi Lumpy, yes have a chat with your oncology department. I used to get hip pain but when I changed brands this eased. It might be worth seeing if you could try a different brand as they all have different ingredients and it may be one of those that’s causing you a problem.

    Hugs from cuffcake x x x x x