Recently Diagnosed - looking for advice and experiences

Hi! Welcome ! I’m quite new on here too!

I was exactly the same after the results meeting… didnt take much in! 
Im also HER2+ but due to size of tumour, l’m the other way round to you.. chemo first then op.  Not sure on the radiotherapy side of things but I do have my herceptin jab at the same time (same day I mean)  as the chemo - every 3 weeks.  I have Phesgo & it’s pretty quick and painless (a little burny when she starts it initially but then it settles)… I’ve only had one session so far - 5 to go!

good luck with your treatment & don’t be afraid to ask questions (I’m rubbish at it btw!) … I always think of things after leaving but you can ring them x

Hi, like you I am triple positive but my tumour measured 21 mm and I had lymph node involvement. Stage 3.  I had 6 cycles of chemo, docetaxel,  carboplatin and phesgo.  The phesgo was by injection administered first over about 8 minutes, then the chemo drugs by infusion. I was also cold capping so took longer than usual.  I had surgery, lumpectomy and axillary clearance after treatment finished.  I had just 5 sessions of radiotherapy over 5 consecutive days.  I am now 11 cycles into a total of 14 of Kadcyla as the pathology results showed a 13mm residue of  cancer cells.  Hopefully will be finished at the beginning of December and will just be having 6 monthly infusions of zoledronic acid, and, of course hormone blockers.  Have not had an MRI but that may be something I ask for just for peace of mind, I will probably have to have that done privately.  Wishing you all the very best, and sending hugs  xx

I was diagnosed 3 years ago,so just wanted to offer a little reassurance. I’m still here, living a normal life, and everything you are feeling is completely normal. Trust in your doctors, they will take care of you and don’t be afraid to contact your breast care nurse at any point ask questions, they are usually brilliant. Good luck and see you on the other side of this roll coaster! 

I was diagnosed many year's ago with breast cancer, it was quite large (5cm) and had a lumpectomy.  In those days while patients were under anaesthetic to resect the tumour, the axillary lymph nodes were also tested, hence saving having another operation.  It had spread into 1/10 of the axillary nodes so had axillary clearance.  This was all under the one surgical procedure.  It was staged at 2 and only radiotherapy was recommended after surgery.  I had the radiotherapy every day for six weeks, with a break at weekends, with a final three day intensive dose.  I only felt a bit nauseous in the first week of radiotherapy, but I experienced really sore skin, I could only describe it as severe sunburn to the area.  The soothing cream I was advised to use was E45 and was given to me free at the hospital.  I was not prescribed Tamoxifen as the Oncologist said I did not need it as I was still a young woman (41) and menstruating.

All this happened 32 year's ago, so don't worry, treatment has come along in leaps and bounds since my day, which includes radiotherapy.  Your cancer is still so small, hence it's called a nodule not a tumour.

Best wishes.