My journey

Hi LizzieVb

Welcome to the forum and sorry to hear that you have been diagnosed with breast cancer.  What you are feeling is perfectly natural  you've been through a lot.  There's an article by a Dr Peter Harvey called "After the treatment finishes - then what? which describes the post treatment world to a tee.  I've read it and found it very helpful.  Have a read of it when you feel up to it.   Here's the link to that article: After the Treatment Finishes - Then What? .

Wishing you the best of luck with whatever comes next for you.

Best wishes

Daisy53

There are so many positive stories even when tumours are large and lots of lymph nodes involved. Shine is a charity for young people with cancer. Yes to life and cancer active are useful charity websites to look at for hope and help. There is also Penny Brohn. I think Hel39 created a thread called positive stories on this forum. If I can find it I will send you the link. Stay hopeful x

Thank you so much Daisy53. That’s so kind of you, I will certainly read through the article. Didn’t quite realise how impactful it will be once the main treatments end (still have ovaries shut down and years of meds to face soon) but hopefully keeping it all in perspective may help ️ 

Thank you Zephyr ️ I’ll look into those Charity websites I’m sure it will be a huge help. Thank you for your kindness xxx

Hi lovely 

Sorry you are here but glad you’ll have us to chat to now 

My cancer was extensive, after pathology I was told the cancer was across 16.5cm although they did say my tumour had actually exploded !? And left scattered parts throughout the breast . My original solid tumour was about 12cm same as you 

I had chemo first hence the scattering and I’m glad I did because it was in at least 7 of my nodes and the chemo actually cleared my nodes completely and they reckon I had about 8 or 9 % of the original cancer left when they did the surgery and I got the pathology back afterwards , so chemo worked quite well for me ( well I hope in the rest of my body too ) 

Im on letrozole and Abemaciclib now with Prostap ( I’m in my 40s and was pre menopausal) 

Any other questions , ask away 

what’s next for you treatment wise 

hugs xx

oh I was diagnosed Jan 2022

Hi LizzieVb, I was diagnosed last year with grade 3 IDC, triple positive. My tumour was only 22mm in size but I also had positive lymph nodes 10 out of 14. I had clear margins but had to go through a second op, chemo, radiotherapy, hormone blockers and Phesgo for a year. I’m still here and thinking positive. Tonight I do the Shine Night Walk for everyone who has or had cancer and hope that one day there will be a cure for all.

Sending you lots of positive vibes.

Hugs from cuffcake x x x x x

Thank you cuffcake, it’s such a lot to take on isnt it. But the future “moving on” is so massive and I don’t think I realised how hard that part might be. But linking up here is so helpful, thank you for sharing your journey xxx

Hello Dollydimple, you’ve been through a huge journey. Thanks for sharing it with me ️ I am on chemo 5/6 at the moment and have already had my mastectomy and nodes removed. 4 weeks of radiotherapy to come due to poor margin. hoping that blasts the lot  I will then have ovaries shut down, Letrozole and Abemaciclib. Very anxious about all that but something to address on stages I guess. How are you finding that part of treatment? I’ve been told these meds will be for 5 years post treatment xxx