I had a lumpectomy first and just finished chemotherapy! I knew I’d need further surgery before radiotherapy because they didn’t get a clear margin. But while weeks of dealing chemo I’d put next steps out of my mind! Whilst obviously still recovering from chemo I had meetings yesterday first with oncologist who went through everything else I’ll be given after op. Monthly injections to turn off ovary, daily hormone tablets for 7 years and 6 monthly injections for bone protection, for 3 years. He then introduced a new drug I’m eligible for 2 tablets per day for 2 years! So Im back to feeling sad and overwhelmed! I’m worried about how involved it still keeps me, having already been tied to chemo for 16 weeks! Am I worrying unnecessarily? How can I pick my mood back up to put a more positive spin on it? I’m back to worrying about reoccurrence or secondary breast cancer after the discussions yesterday! They are all so clinical and matter of fact, not taking into account how these discussions leave you feeling!
Well yes, you would be worried and emotional. We all are sometimes.
Once again, your process is near identical to mine - would the drug be Abemaciclib (spelling?) by any chance?
The only difference for us is that I think I've escaped 2nd surgery, it appears a 0.2mm margin is enough?!?!?
I'm thinking if it's what it takes to stop reocurrence then I have to try, even though it seems like an awfully long time.
My Mother had bone cancer at 56, wasn't offered chemo. She was diagnosed with secondary breast cancer in her bones about a month after my diagnosis. It gives me more reason to go ahead with all this, seeing her work through this now.
Here if you want to chat any time.
Yes that’s the drug. I think I’m with you on trying it all and hoping no awful side effects. The operation definitely getting to me. So unlucky not to get clear margins first time. Have they offered your mum anything to get through?
Hiya,
Yes Mum is being very well looked after now. She's doing ok and they hope to stop/reverse the damage and give her a good long life. Apparently as it was the ER+ breast cancer cells it makes it much easier to treat.
I have just come home from my second attempt at paclitaxel, but unfortunately had an even quicker reaction this time, even after all the premeds. They've decided it's too dangerous to try again and will change the drug, most likeley to nab-paclitaxel which is a 3 week cycle. SO I'm now faced with an even longer treatment plan.
I was originally finishing 22/9. Pushed back to 6/10 because of my first fail.
Now I'm looking at another 1-2 week wait and maybe 9 or 12 more weeks depending on how many doses I'll have to have.
I can't imagine my radiotherapy will start until after Christmas now.
Oh bless you, that’s not good to hear. Makes you wonder why they use Paclitaxel at all! I’m sorry to hear this delays your treatment, especially when you just want it over with, this is a really hard journey. I’m glad they are helping your mum. How did they know she had it in her bones now? Did she have pain?
She did have some pain in her arms which wasn't diagnosed as anything other than shoulder stiffness - an unrelated chest xray picked up bone damage which was investigated further.
She was lucky she had the chest X-ray then, so she could get on hormone treatment earlier. X
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