Chemo cycle 2 delayed a week - feeling upset

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I have just had a telephone appointment with the oncologist prior to my cycle to of EC starting tomorrow. Because I am not back to how I was before I started in terms of appetite, strength, activity, et cetera they are delaying cycle to buy a week for me to recover more.

How common is this? I do appreciate that they know best, but I am desperate to get on with this treatment and get it finished. Do you actually get back to feeling up to full strength by the end of each cycle? I know I have experienced some significant side-effects of tiredness, nausea, lack of appetite and feeling generally unwell.

feeling demoralised.

  • Hi looking back I was never a 100%. I had chemo every 3 weeks and was told most people for the third week felt fine.  I was lucky if I got a couple of days at the very end when I felt up to going to town, doing basic shopping, and having a coffee.  Having said that I never got sickness and basically found it all manageable. A big bonus was that during chemo my osteoarthritis was so so much better, perhaps due to steroids .  3 years on I am suffering more now than I did then from the effect of the aromatase inhibitors that have worsened my osteoarthritis. 

    Chemo nurses were always a fantastic support whom I could contact if ever I had a concern or query. Hope yours are as good. Good Luck

  • Hi, I remember having a delay with one of my treatments and it was so very frustrating.  It made me realise that I had built everything up and planned things around it and then it all got changed. I think when we are stressed and worried, such changes seem emotionally much bigger than they are.

    Your medical team want to give you the best possible chance of getting through this and they have bags of experience, so I guess you have to trust the, and do what you can do rest up and eat well.   Best wishes 

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  • Hi Rozalia 

    I don’t think I had expected to be 100% either. I have read of people who have very few side-effects and have been able to continue with life pretty much as normal, including working, and it makes me realise that I have had a very different experience to that. 

    I will put all my energy into having a good week so that when they ring me next Wednesday, I am fighting fit Joy

  • I have my chemo every 2 weeks, but I had a reaction to my last chemo session.

    I was given the impression it would be attempted the following week (many folks are in again the next day, but mine was the Friday before bank holiday Monday).  When I called on the Tuesday I was told they were too busy all week because of bank hol and I would get my re-attempt on the day they'd booked for the next cycle.

    I can't tell you how frustrated I was, as I'm now 2 weeks behind and was so looking forward to the end and getting a long awaited holiday.

    In the end I have comforted myself with the fact my body had a break which it probably needed so I will take the positives.

    How are your bloods? I know they will delay if the results aren't what they expect.

    As for EC, when I had that I found the tiredness was cumulative and lasted a few days by the end of the course but being 2 weekly I was ok by the next cycle.  Not sure I could have coped with the same on a weekly infusion.

  •  it happens, and i understand the wanting to just be done, but take the time to heal more, i am every two weeks and the last two have been a tad brutal. at the moment, i  would consider an extra week so i could enjoy more days, but at the same time, sooo want it to be done.

    sending hug, and try to eat more protein to bolster strength, even if its just yoghurt