Letrozole after a while …

I took it for two years. Had all your symptoms   Rang breastcare said I needed a break and try something else. Tamoxifen.  Tried it felt worse.  So I have gone back on the devil I know.  I have also tried Anastrozole   Don’t know whether there is an alternative.  You can read on here lots of women have no side effects but a lot of women have same as us   Only 8 years to go !!!! 

Hi Dollydimple

I found my hands were so stiff with swollen fingers in the mornings after about 6months of Letrozole. Also had the knees and feet aches.

When I mentioned to my onc about the hands and that it had struck me that I would not be able to drive in the mornings, she switched me to Examestane. I actually didn't ask her if I could switch. It took a wash-out interval of about 6 weeks or so to improve.

I still have a little bit of the knee & ankle aches to start off with in the morning, but not so bad and I can certainly say that the hands are massively improved. Dr said each of the AIs have their own side-effects and that while she couldn't guarantee improvement, it was worth a try. I think it is about 18 months now since I changed over and I am glad that I did. 

There is no harm in asking for a change. Exemestane works in a different way.

I would be too scared to stop the tabs. So onward and upward.

Good luck

Wallydug

Wish they could just give us an injection once a month   

Hi

I've been on Letrozole for 10 months now. I have numb fingers and toes each morning for some reason and also constant ache from the hips down but have been told by my oncologist that its one of the side effects  xx

Hi 

I've been on Letrozole for 12 months I've had to take a short break twice due to painful knees wrists fingers and ribs I'm very tired and can't sleep and have many hot flushes a day ike you I feel really old and it's getting me down I've been offered Tamoxifen but it's not as effective for post menopausal patients I've been told I've tried different brands but no real difference I'm looking at taking it for another 9 years ! 

I have all the same symptoms as you and switched to exemstance about a week ago so too early to tell yet. I thought it was worth a try and I can always go back to Letrozole if it’s worse. 

Hi Got This

Give the exemestane a chane. For me it was a few weeks before the letrozele effects left me. Definitely this is a better option for me.

Good luck

Wallydug

Wahhh 8 years 

I know it’s for good reason that we take them but jeez it’s not much fun is it  

xx

Hi

i think it’s definitely worth an ask , I see the oncologist soon so I will see what she says 

Im glad you’ve seen improvement as you say I’m too scared to stop taking them too 

xx

Yes ! I’d be fine with that , another injection along with my Prostap would be fine by me  

xx