Hi everyone, and I hope you are all ok.
Had op 4 weeks ago and went for results this week.
One node positive and chemo to start in a few weeks.
I was scared/am scared but not totally shocked.
Anyone else has similar experience?
Love to you all ️
Hi Jax, I was shocked when I was told that chemo was necessary; I had a good oncotype score, but it was 2/3 points over the mark (dagnabbit!).. I was so disappointed, but now I’m glad I had it! It’s really not as bad as you imagine it’s going to be and it’ll give you peace of mind going forward knowing you’ve done everything you could possibly do to get past it! Just power through and you can always stop if you don’t want to continue. I was prescribed 6 treatments and managed to cope with 4. The first 3 EC’s were quite easy, I had steroid highs and was very happy! But the paclitaxel knocked me out, I didn’t like it, so decided to stop at that point. I think it was the injections of filstagrim that I had to administer following the paclitaxel that paggered me. Anyway, don’t be scared; you can do it and you’ll be fine at the end. I’ve been feeling great since my treatment ended (mastectomy, chemo and radio). I have a new lease of life, even whilst taking Anastrazole for over a year (which is working well for me). So this is not the end of the road, it’s a new beginning and an experience that will change your outlook. All the best, stay positive and enjoy every day! xxxxxxxxx
Oh Mazz, thank you so much!
Your reply means a lot to me I really appreciate your advice.
I haven’t had an appointment with the oncologist as yet so not sure of the details and the different medical terms etc!
Yes, you’re right when you say that this is a positive thing! Get really down sometimes but have to remember that it will all be worthwhile in the end!
I also had mastectomy and maybe will have radiotherapy but definitely chemo so at least I now have a plan. Waiting is the hardest part isn’t it?
I’m glad that you have finished your treatment and are feeling so much better xx
Definitely waiting is the worst! Every time a letter drops on the mat it gives you the heeby-geebies! It still does me. I don’t know how old you are or what type of BC you have, but either way, you’ve no option but to get on with it. When I found out I was devastated, as we all are; but I thought to myself “if this is it, I’m going to enjoy every day” I felt well, so why not! And now, I’m out of the woods and cancer free (as far as I know) and I’m living each day like it’s my last! Nobody took my eyes, legs, arms….blah, blah. Just my boob! I’ve managed perfectly well without it! Try to keep smiling, if you’re feeling fit, keep walking and smiling, get through the treatment and know you’re going to be fine at the end of it! Best of luck and huge hugs to you, you can do this xxx
Oh Mazz thanks!
I’m nearly 52 and had multiple tumours removed during mastectomy.
Invasive ductal carcinoma as I understand/grade 2. Unsure of stage but think they initially said stage zero, but think it’s stage 2.
Yes I was up and about walking couple of days after op and have been ever since. Taking it easy, but still determined to keep fit and as healthy as I can.
Sometimes all seems like a bad dream.
You’re right when you say you are set to enjoy each day. It’s so true that you begin to see the positives in life. Never thought I’d say that!
Yeah, I remember feeling really down; (a nightmare I couldn’t wake up from), I was glum and wretched! A feeling I’ll never forget! I felt a bit suicidal for a day or two after my anaesthetic! Like nothing I’d ever felt before…… Fortunately, I got past it and feeling better than ever now. Hopefully you have a good network of support around you. But there’s nothing like your own positivity, that’s the best medicine! Take heart and know that this will pass! xxx
Take care of yourself and we are all here to support you and get you to the other side of cancer. Hugs to you.
Barbara
Barbara
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