HER2+ Diagnosis

Hi Eli35, I just replied under your other post. Sorry to hear you are HER2 positive. I’m still having Phesgo, a targeted treatment for HER2. For me I have an injection every 3 weeks for a year. It’s a little stingy at the start but I just put my hand over it and the warmth from that helps and the sting disappears. Other than that I do t have any side effects only from the pre meds as I had a reaction to the first one. 
I put a little more detail in the other post for you.

Wishing you all the best

Hugs from cuffcake x x x x x

Hi I was diagnosed 2 years ago with DCIS stage 2  ER+ HER2+ breast cancer had a lumpectomy and I was given 12 weeks of paclitaxel and 1 year of herceptin every 3 weeks and 5 days radiotherapy. all went well I lost a few finger nails and my hair but I now have a full head of hair finger nails but they are very soft and brittle but cancer free I hope all goes well for you my lovely regards Belinda xxx 

Thank you for replying Belinda. That is my exact diagnosis and it’s so very helpful to hear your experience of the treatments. Thank you so much, people here are so supportive & it helps such a lot. I am delighted you are cancer free & thank you for your good wishes xxx

Hi, I have been diagnosed with Grade 3 invasive ductual breast cancer oestrogen positive and HER 2 positive, stage 2b, my treatment plan is ec-t chemotherapy for 6 cycles and when I'm on 2nd half of cycle will have phesgo injections for 18 cycles, will have surgery and radiotherapy, only had my 1st cycle of chemo a week tomorrow x

Hi

sending all my best wishes for your treatment & surgery  I’m trying to decide which treatment plan to go with at the moment, but recovered well from surgery. It’s good to start the practical steps on the way to recovery xx 

Hi Eli35  my story is on my profile feel free to read my treatment path .

I was diagnosed DCIs grade 3 Her 2+ in 2019 . 
If you read profile you will see MX, chemo ,Herceptin then bisphosphonate finishing December 2022

Regards Herceptin I found that it was very little problem , compared to chemo it was a doddle lol mild flu like SE for a couple of days plus some fatigue .  
It is a slow injection and can be painful my team would give me the phial to rub between hands to warm it up after the fridge this reduces some of pain also rub thigh to warm the area up. If it still hurts tell them if they slow down it helps 

I was told the risk of recurrence was  reduced by a good margin with Herceptin so worth having  . Hopefully clear results from last weeks mammogram means I’ll be 4yr Neddy 

Hi Margaret

thank you so much for sharing your experience with me, it’s so helpful to hear positive advice on how to make things easier. Wishing you all the luck for clear results & take care xxxx

HI Eli35 
My diagnosis was left breast 13mm grade 2 IDC plus 4mm intermediate grad DCIS. ER 8/8, PR8/8, HER2 3+. Negative sentinel lymph node status. Margins all clear at surgery. You can read my profile. 

My oncologist said with the targeted Trastuzamab 3 weekly injections (in addition to the chemo/radiotherapy) it gives me a very good prognosis along with Letrozole tablets for 5 years which would also reduce chance of any recurrence by 50%. So for me that and the tabets are important and good news. 

All the best with your treatment. x 

Hi 

thank you for taking the time to reply. I read your story &, as with others who’ve shared, it really inspired me. You are all so kind to share your experiences to help others. I also wish you  all good things now & for your future. I hope I can find the same inner strength xx