Triple negative invasive duct grade 3

Hello there, I got diagnosed with tbnc (stage 2, with lymph nodes) last year. I was 50 with 2 older teenagers. It was difficult at first, but once a treatment plan in place, it was easier to cope for everyone. My son took it easier than my daughter going into her final year at school. However, her friend became her nominated  ‘cheerleader” and told people so she didn’t have to. I did the same with a friend, so I wasn’t bombarded with people contacting me at first. There’s a lot of treatment and it does take the year. It is a whirlwind, but knowing it will take time and you have to go to bed in the early days post treatment - and everyone is aware of this in advance really helps. Time will fly during your treatment, to keep myself busy I did on-line yoga/art therapy etc…. I was pretty rubbish at these but I met people and had a laugh. It also showed the family that although my life was temporarily different, I was doing things and looking forward even on rubbish days. We also got a puppy, who has given us a different but fun focus. Best of luck on your journey. X

Thank you for your response Elliebabs , I will find out next week what my treatment is, I have been told it wipes you out but not sure what else to expect. I have already thought about things to keep me occupied and also have a dog who I'm sure will be over the moon that I'm not working for a while so can have lots of attention. 

Hi Janelle

Welcome to the forum and sorry to hear that you have been diagnosed with breast cancer.  Your oncologist will go through the possible side effects with you when you see them.  While you may get some of the side effects it would be unusual to get them all.  I had hardly any side effects when I had treatment two years ago.  The only side effects I had were some heartburn and some neuropathy in my hands and feet.

There's a booklet on the Macmillan website that explains how to talk to children and teenagers about your cancer and  your treatment.  you can either read it online or request a copy from Macmillan.  Here's the link to the booklet: Talking to children and teenagers booklet | Macmillan Cancer Support.

Wishing you the best of luck with your treatment.

Best wishes

Daisy53

Hi, I'm also 45 and was diagnosed on 22nd June with Grade 3 invasive ductual breast cancer oestrogen positive and her2 positive has gone into a couple of lymph nodes, 3 days later had CT scan, then 3 days after had 1st oncology appointment where discussed treatment plan signed consent form, had bloods and ecg, then more bloods the Saturday, then the Tuesday was telephone appointment explaining treatment and what happens on day, then hour later back to oncology to see consultant then went had picc line fitted, Wednesday was mri scan, then bloods done Monday and then Tuesday this week was my 1st chemo then 2 days after I had results of scans and cancer hasn't spread elsewhere and I have been staged as 2b, then off for echocardiogram same day. My treatment plan is ec-t for 6 cycles every 3 weeks, when I go for cycle 4 onwards I have an injection of phesgo as well I think that's for at least 18 cycles will have surgery and radiotherapy.

Best of luck on your journey

X

Hi, it’s a bit of a shock to say the least isn’t it! I found I worried myself silly and didn’t sleep for weeks with ah ing nightmares etc. I was exhausted and scared which is all natural as we process the diagnosis and information give to to us. I googled everything and convinced I was going to die , so don’t google but use reputable sites which are more up to date with treatments etc. get yourself a v pillow , it will be your best friend. I was diagnosed with triple negative end of June and have been on a rollercoaster of biopsies, consultations and tests. I am awaiting to hear if it’s spread to my lymph nodes after having the sentinel lymph node biopsy last Monday. I sobbed when I got to the ward I was so scared but it was nothing like I thought it would be and I was so relieved with it all and very impressed so that it’s now reduced my anxiety of other procedures completely. Yes I’m worried about chemo like us all but hopefully it’s not as bad as I imagine too. It’s hard telling others and I decided to get it all out there as didn’t want ground hog day of people finding out in dribbles and having to go through the same pitying scenarios and having to explain diagnosis and treatments etc. I’m very positive and this helps but I do get wobbly days as you will too and that’s normal. We are human after all. I’ve read lots of positive outcome cases with similar diagnosis which reassured me. Your not alone there is a whole community of us here supporting one and other through this journey and here when you need us . Massive hugs for you xx

I am sorry to read that all of you are fairly newly diagnosed with TNBC at various stages. I too had TNBC. You might be encouraged to know my diagnosis and treatment was in 2015. I had my op first as the tumour was small.  A friend, whose tumour was larger, had chemo first. The chemo worked well and shrank the tumour which meant her treatment plan could be changed from mastectomy to lumpectomy. For me the treatments were tough. I did have side effects but I do know that there have been improvements in the dose management since then so things should be better for you. Perhaps warn your families that in a ' worse case scenario' you may need to rest, probably in bed for a few days after treatments. Having a ginger drink to hand can help too. I am sure all other possibilities will be covered at your oncology appointments.

I wish you all well. BC treatment is very successful today. I am here 8 years on as evidence!

Fantastic that you are doing so well it gives us all hope and helps us to remain positive .Thank you and Best wishes to you too xx

Thank you so much p  for taking time to reassure us. It is a scary situation and we need to keep hearing the positive outcomes to reassure us during our own lengthy journeys  xc