In October 21 I was diagnosed with stage 2 breast cancer estrogen receptor positive with one lymp node affected .
After having a lumpectomy I was found to have cancer in the borders and went on to have my right breast removed in January 22 . Not long after and still feeling positive and quite well I was asked if I'd like to be part of a study to find which patients would benefit from chemotherapy and which wouldnt. I agreed only too happy to assist research of any kind . A sample of my tumor was sent to America when the results returned I was delighted to be told that my chance of cancer returning was 15 percent over nine years . Consequently chemotherapy wouldn't benefit me and might actually cause unnecessary suffering. Never one to use a sledgehammer to crack a nut me and my oncologist moved on accordingly and I had radiotherapy which I coped with rather well despite being 66 years of age . You've probably guessed where this is heading ? Yep the test was wrong, I'm now stage 4 secondary cancer in the bones I have it in 6 different places . Only in February of this year I was told my mammogram was clear, something didn't feel right i knew it was back despite being told the discomfort was down to lympodema. This month i underwent a bone scan then a CT scan . My intuition was correct
My reason for posting this is to warn others that might be baseing thier treatment on this test . Please don't let this be your only deciding factor Chemo might have saved me , it might not .
I'm not looking to place blame anywhere just to bring people's attention to it. I will be contacting the trial organisers personally to be certain that they have the full facts .
