Process of receiving biopsy results

  • 29 replies
  • 287 subscribers
  • 5902 views

So 13 days ago I had two sites biopsied - a mass in my breast and an enlarged lymph node next too the mass.

Last week I asked the breast nurse several questions. One being if my results are negative will I receive these on the phone and if they are positive will I come in face to face? I got told due to covid we have actually at times gave bad news over the phone and vise versa sometimes we get people to come in to deliver good news face to face, this left me wondering when I would receive my results what they may be.

Fast forward to today - I explained my anxiety is extremely heightened the more time goes on.  I am struggling to perform in my job as I am just so worried. I asked if my results were back and got told they were, they need to go to MDT on Friday and she is unable to access my results. The nurse started talking about something else, I interrupted her to clarify. You have my results but you are not able to access them personally, is that right? I got told yes, she had a look and said I have an appointment booked for Tuesday morning next week. She said to try and not worry as she will be with my when I have that appointment. I started crying and getting very upset, I said your going to tell me something bad aren't you? She then said we haven't got your results yet they need to go to MDT first. She said to try and get a note from my GP if it may help and asked if I was on anything for my anxiety? 

I work as a nurse myself in a different departments, from my department MDT review is usually positive results only.  Is this different for breast biopsies?

Secondly, I am petrified the fact my appointment seems so soon after the MDT review that it is something bad. 

The fact the nurse will be with me in the room is also raising my concerns I'm going to get told something bad.  Has there ever been times were a nurse has been in the room when giving a negative biopsy results?

My sister phoned the nurse back as I was absolutely distraught. My sister said how bad my anxiety is she said they are not able to say my results they need to be reviewed and all results go to MDT. 

My sister asked if I could have an appointment Friday afternoon after MDT? She said I have been given the nearest appointment as the consultant is in theatre all day Monday and this is the next one (also raising my suspicions more I have something serious).

The nurse phoned me back to say she had spoken to my sister (it was nothing confidential discussed just general questions). She asked if I had got something sorted from my GP to help with my anxiety as she was in process of writing to my GP and going to ask to prescribe something for my anxiety. Also raising my concerns theres something serious, as my GP wont get the letter until at least Friday and if its good news it seems strange to prescribe something if its good news to help for only a day or so.

I feel so scared /worried. Can anyone help me with the above questions.  Im sorry for such a long essay! Sob

  • So sorry you are going through this uncertainty. I was told at my first appointment with breast care nurse that it was highly likely I had cancer. I was told to try and not worry but do something to occupy myself until I see the surgeon two weeks later. I had biopsies taken at my first appointment and the results were back when I saw the surgeon. I was fully expecting to be told they were positive for cancer so I wasn’t particularly surprised when that was confirmed. It’s all very well being told to not worry but very hard to do! My surgeon told me that the cancer team meet a Monday to discuss all the patients under their care and to decide on the best course of action in each case. Maybe that is what your nurse was meaning when she said the results need to go to MDT to review? I hope you get your results soon and your anxiety lessens. It’s such an awful situation to be in.

  • Hello jenny. I went through exactly the same as you in April this year I also suffer with high levels of anxiety. I also had xray and biopsy after my mammogram then had to wait 2 weeks for results the doctors had a meeting on the Friday and I had appointment on the Tuesday. Got to my appointment on the Tuesday and the consultant and breast nurse told me and hubby to take a seat in a private room. The results are back she said and I'm afraid to tell u , you have cancer of the breast and lymph nodes. I broke my heart told them that I couldn't deal with the diagnosis.  Fast forward to now I am due my second session of Chemotherapy tomorrow can't say I sailed through the 1st dose but everyone been excellent support including girls on the Chemotherapy ward. Jenny I promise you that if you are positive it will take a week or so to process it but your will accept it so much better after the processing time. I'm always here for you of you need a chat. Xxx

  • I'm her2 positive so the best treatment for me is chemotherapy then operation and then radiotherapy plus 5 years of medication xx

  • Im so sorry to hear about your diagnosis. Glad you have been so positive about it after getting your treatment. Yes the wait is awful, I feel I will be able to deal with it better after I know either way. Good luck with your treatment thanks so much for getting back to me Pray 

  • Thanks so much for replying, it gives me a bit more insight. So sorry to hear about your diagnosis. I just hope and pray for the best outcome Pray. 

  • No probs Jenny. Please let me know how your results go. Chin up xxx

  • Hi Jennyk, sorry that you are having to wait to get your results. The MDT is the multidisciplinary team which is made up of health care professionals. They will discuss your results found from your biopsy and work out your plan and what treatment you will need. 
    When I had my results I was given part from the nurse and consultant where I had my biopsy, mammogram and ultrasound. This was the basics explaining what cancer I had and what possible treatments I would have. It then went to the MDT to discuss further in depth as they would have been given a lot more info. I was then given the full results and care plan by my surgeon. 

    The waiting for results is the hardest part as you don’t know if it’s going to be good or no so good news. I think most people have a high level of anxiety so you are not alone. It’s always easier said than done but try to keep yourself occupied. If you click on my name you can read my journey. Remember cancer is very treatable now. Treatment has come on in leaps and bounds and it’s not one treatment fits all its now based on each individual and their specific needs. You could visit the pharmacy and ask them for some natural calming help. I have used Bach remedies and found them very helpful. 
     
    We are all here to help and support as we know exactly how you feel. We are all at different stages of treatment and are happy to offer advice on how we coped or got on with treatments. 
    Wishing you all the best for your consultation on Tuesday.
    Hugs from cuffcake x x x x x

  • I will do, thank you so much Hearts

  • Hi cuffcake, 

    Thanks so much for replying sorry to hear about your diagnosis. So grateful for the support available on this forum and advice, it has helped immensely Pray.

    Thank you all the best of luck on your journey. 

  • Hi JennyK

    The waiting is horrible, and it sounds as if you’re struggling with it. Unfortunately there’s no way of speeding it up. Until they’ve been looked at by the MDT there isn’t an outcome to give you, the team look at things in detail and anything you were told before that happens could prove to be wrong so even though people know what information is going into that meeting they don’t know what information is coming out. 

    In a way I’m lucky, I had a very good idea what was coming at my results clinic as I’d asked the consultant who did the scan and biopsy what she thought, and she told me. It gave me time to get my head round the probability that it was cancer. 


    I’m hoping that isn’t what you will be told, but even if it is, breast cancer is very well understood and there’s a range of very effective treatments. It’s not a journey anyone wants to be on, but there’s a lot of help;  consultants (my surgeon was lovely, talked everything through and involved me in decisions) breast care nurses,  forums like this, MacMillan centres, the list goes on.

    Have you been to your GP? The letter from the nurse might have been transferred electronically, but even if it isn’t at the surgery yet they will understand and it might be that they can offer you something to take the edge off your anxiety.

    good luck, and hugs.