TNBC now starting EC

Hiya i have tnbc and in 2 weeks i will be starting ec my oncoligist said its quite intense but i have heard from forums it was fine if any one else has had ec i would really like to know how they got on ?

I'm in the same boat - just finshing 4 cycles of weekly Taxol with Carboplatin & Pembro added on week 1. My first 'see if its working scan' is  next Friday then I start on EC with pembro every 3 weeks for 4 cycles prior to surgery et al. (I'm TNBC) There seems to be some real horror stories about EC out there but my oncologist has told me never to understimate weekly chemo - its hard enough. I'm just playing the wait & see game - I'll be having it whether I like it or not !!

I did ok on EC - ,tired after second cycle, one throat ulcer (managed with mouthwash), and a bit spaced out at times - but otherwise was ok. I finished 5 months of chemo last week - used the cold cap and kept my hair and also had a complete response to treatment half way through.

I have a faulty gene mutation so I have stark surgery options unfortunately, but in terms of my TNBC, the chemo has obliterated it and left me intact

Keep an open mind and try not to fear what may not happen in terms of side effects would be my advice

Thank you - I'm trying to keep it in perspective & so far aside from an infection via hayfever ithe chemo is easier to manage than my menopuae was - it blindsided me as we came out of second lockdown when my business & parents needs went crazy.

Very best wishes for your surgery - if you watched the Sarah Beeney documentary (Channel 4) she was able to get a second opinion on surgery with different options - I guess you know this x

Just had my second EC one more to go, first 3 days not well , a lot of fatigue l manage to have a short walk in the morning by the afternoon l sleep in the chair ,  then it hits me hard on the fifth day chemo brain, feeling sick and unwell like having a good hangover l cannot do a lot at all on this day, the next day I still feel light headed and not well l sleep most of the day but by the evening l’m back to normal although still weak I am able to drive and go out walking , doing some housework and shopping.  I take all my anti sickness tablets so l’m feeling sick but not being sick, I do get a horrible taste in my mouth so I just use a small amount of robinson juice in water, l drink 3 litres of water a day , also I drink a glass of full cream milk before bed I find it helps with indigestion which l get. Also I regularly wash my teeth and use mouthwash throughout the day , when l get a sore mouth l gargle with salt water.

I think you are doing amazingly well. It is hard especially when even water tastes disgusting. It is 3 years since I finished chemo but your account took me back. Go with the flow, take it easy when you can and take all the help from others that you can. There are some good things too,  beauty pamper session, Macmillan support groups, etc. I went off food but on the days I enjoyed it I treated myself to a glass of organic high quality wine Well a ten pound bottle!! Love and hugs x