Abemaciclib

Hi I had sickness and diarrhoea intially but it has settled down and very rarely sick. It settled down after a few cycles. I’m still on 150mg twice a day, about to start my 8th cycle.

Hope you get answers tomorrow  x

Hi 
Thanks for response.  Guess I’m unlucky this time.  I really hope I can tolerate this as I know I will have to go back on it. Obvoisky for my own benefit xx

Hi sorry you have had bad time I have taken this drug on and off since January still few issues I'm on 100mg have achey joints not great appetite fuzzy head  mornings but other than that ok try lower dose see how you go xx

Hi Tracey how did you get on with your oncologist? I sadly had to stop taking the  Abemaciclib as it was making me so ill. I even tried 50mg . I hope you have more luck . Wishing you all the best x 

Hi BT

They have given me another week off and will put me back on 100mg which I’m not looking forward to.  They also said they could try 50mg.  I explained about sickness which for me is the worst part.  m dreading it and thinking I may be like you.  Too harsh for me.  What to do

Hi mere

Glad your still coping even though still hard.  It’s the sickness for me and if I had renal failure after two weeks I’m dreading starting back.  Jesus what next.  Good luck to you xx

Hi Tracey, I know it's all not nice I take and try forget but symptoms scarey .  Did they say renal failure from the drug ? X

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Hi Tracey I’m sorry you are feeling unwell. It’s so strange I had a lot of chemo and coped well but these tablets were terrible I had every side effect then I got an infection made me feel quite illAnd everyone kept commenting on how unwell I looked. I feel fine now . I hope you will be able to continue maybe your body will  get used to the drug . I just wish these drugs were kinder !

Please stay in touch and let me know how you get on . Xx 

Hi Mere

yeah Definately the drugs.  I hate to say it but worse than chemo at least with that we knew it would end and we would feel better.  I’m so sad  right now that I thought I had done all the hard work but it seems I got a long way to go xx

Hi Tracey, this drug is for two years I know it's very hard and side effects not nice at all , ask if can try 50mg see how you get on . definitely going to ask to go to 50mg.if  Not happy at some stage . Take care xx