Neratinib

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Hi Everyone,

Just a quick query.

I just wondered if anyone who had a triple positive grade 3 diagnosis with surgery, 3x EC and 3x Docetaxol , 5x radiotherapy and herceptin and anastrazole as treatment , have been offered neratinib as extended therapy.

I fit the general criteria but don't know if it 's tumour profile dependent, age dependent or post code dependent! I 'm only due a couple more herceptin injections and don't know whether or not I should be enquiring about this.

Looking back at some previous posts in the forum , it seems a very harsh treatment.

Thank you and love and hugs to everyone here.

zephyr over 2 years ago

There is good evidence in support of taking it to finish the mopping up of any stray cancer cells after you have finished the initial treatment. It might be ok for you too, and there’s always a bias towards the worst side effects being talked about. Have you asked your oncology team about how much added benefit there is for you from taking it? It’s so hard making decisions about all these new drugs, but I think we are offered them based on sound scientific research. X

WMK over 2 years ago in reply to zephyr

Thank you Zephyr,

I will ask my BCN whether or not it will be an option for me. I would obviously like to give myself the best possible chance , as we all do, but don't know if my health authority will fund it as it 's a very expensive drug.

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