HER2 Positive 8mm tumour

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I have had my post operative results today and generally I am pleased.There is no node involvement but the margins aren’t clear so I need another op. I had a 64mm x 41mm area removed and within that was an area of HER2 positive IDC that was 8mm. Before my results I was told I needed chemo (because of HER2 result) but  I am wondering does anyone else have a similar experience as I feel chemo seems unnecessary for such a small area that has now been removed. Thank you 

  • Hi Mrsmagoo

    Sorry to hear that you need another op.  It's completely up to you whether you want to do chemo or not but I know that if I was given the choice I would do chemo as I'd feel that I'd done everything I could to make sure that the cancer doesn't come back.

    Wishing you the best of luck whatever you decide to doz.

    Best wishes

    Daisy53

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  • Thank you Daisy53, it is useful to hear other’s perspectives. 

  • Hi mrsmagoo, I too was HER2 positive plus oestrogen and progesterone positive too. I’m no expert but I understand having chemo helps to mop up any cancer cells that are too small to be detected and may be roaming around the body. The HER2 can be treated with targeted treatment to help prevent recurrence and I believe the HER2 positive isn’t just in one area but could travel around the body as it’s in the cell make up. The best person to discuss this with you would be your oncologist as they would be able to shed more light on this. Also the Macmillan website will have lots of information on this too.

    I’ve just finished 8 rounds of chemo of which 4 had targeted treatment Phesgo for the HER2 positive. I will continue this treatment (only an injection every three weeks) for a year. I’m scared of the cancer returning so am doing all that is offered to zap every last cell. I will also be having radiotherapy too on my breast and surrounding area as I had cancer in my lymph nodes. Plus hormone treatment for 5 years.

    You can click on my name and read my diagnosis and journey so far.

    Everyone is different and we all experience things differently and one has to look at the facts to be able to make their own decision as to what they feel is best for them. Please do talk with your oncologist, breast care nurse or MacMillan as they are the medical experts and will be able to explain everything fully to you to help with your decision.

    Wishing you all the best for your journey.

    Hugs from cuffcake x x x x x 

  • Thank you CuffCake2000 for your response, I am going to email my BCN with a couple of questions but I am going to take my time!!! I find that in these meetings I am not very good at thinking on my feet JoyJoy Generally, my meeting was very positive and I am very grateful for that. 

    i wish you the best of luck on your journey and send hugs and positive vibes Heart

  • Hi mrsmagoo, yes meetings are difficult, I too am not good at thinking on my feet. You get the shocking news and then don’t really have time to think or know what to ask because of not having the time to digest. I find it’s better to be able to get what info I can and then sleep on it as it were. That way I can think of questions I would like to ask and hopefully get all the answers to help.

     I’m glad your meeting was positive and wish you all the best with your journey.

    Hugs from cuffcake x x x x x