Successful chemo for lobular Grade 2?

Hi Lullabelle 

I am exactly the same as you and think this too. 

I think it's the node involvement that brings chemo into the mix not so much the Lobular. 

I am fighting hard to get more than just an annual mamagram on my remaining breast as not great at showing it up. Like you say you can't help but worry . Hope you get on ok I finished my Radiotherapy last June which apart from meds was the end of active treatment. So doing ok but in the back of your mind lurks unanswered questions. Lots of love ️

Thanks so much for replying, glad to know you’re out the other side in terms of treatment.  Good luck on the pushing for more than an annual mammogram, all I get is it isn’t NHS policy which I understand but is of no help to me.  Hoping that chemo and hormones are enough to zap stray cells, we can but hope! Enjoy your Easter weekend x

Hi, I had a mixed tumour. Invasive Lobular, and Invasive Ductal. I had a complete response in the tumour, including the lobular. 
I had chemo before Surgery, 2 x EC annd 4 x Docetaxal. After one cycle of a D there was a very noticeable response (the thickening almost disappeared within two weeks). My understanding is that the two chemotherapies work in different ways. 
I agree about the mammogram issue. I had a mastectomy, 15 doses of radiotherapy, and 18 months later, a second mastectomy. I am still on Anastrazole. A big hug to you x

Oh that is so great to hear! So glad you are doing well after what sounds like a long journey for you.  I’m sure that will reassure a lot of lobular and ductal ladies. Mine too is a mixed invasive and ductal.  Thanks so so much for replying, it can work!  Made my day x

I wonder if I’m being fobbed off!  I queried why I need Amebaciclib when my oncotype recurrence test was 17 so was told I wouldn’t benefit from chemo.  To my surprise a different oncologist told me that chemo doesn’t work very well on lobular breast cancer.  I’m told I’m high risk of recurrence so why wasn’t I offered chemo I’m now wondering.   My problem now is that I’m not tolerating Abemaciclib very well so worry there’s a big gap in my treatment.  
I wish you all well. Xx

I don’t think you are being fobbed off, my surgeon said probs no chemo as grade 2 but oncologist I think due to node involvement recommended it for me, and also I’m perimenopausal and the hope is the chemo will push me into menopause too, under 50 etc. It’s all very individual on our stats, my Predict score was 7% lift with chemo, still not wonderful but I’ll take anything.  Sorry to hear about you not getting on with your treatment, It’s all so blooming hard xx

That makes so much more sense to me now,  thank you for sharing your experience.   Best of luck with your treatment.  Yes, it’s all so blooming hard for us all. Take care. Xx

Hi, I’m sorry that your aren’t tolerating Abemaciclib well at the mo. It wasn’t available to me, unfortunately. By the time it was approved, I had been on Anastrazole for 11 months ( I think cut off is 3 months). They didn’t do oncotype tests either then, I was already on chemo two weeks after diagnosis. I was diagnosed January 2021, and treatments have moved on since then, which is great. Likely I might be treated slightly differently now. So I don’t think you are being fobbed off … it’s likely what happens now, rather than when I was diagnosed. Xx

Thank you Cloudier,  I think I’m just  feeling a bit nervous about it all at the moment.  Must pull myself together.   I wish you well xx