Invasive Lobular Cancer Rash

Hi Lolly P I am sorry you're back in this uncertain time again and hope you have some answers soon. I haven't experienced this myself, but I noticed your post hadn't had any responses yet, as the site is quite busy. My answer will bump you up to the top again and I hope someone with the relevant experience will be along soon. Best wishes 

Hi, I’m not sure if I have relevant experience, but I’ll tell you a bit of my history. In January 2021, I got out of the bath, to see a widespread scarlet rash over my  lower breast. Fast forward to post scans and biopsy. I was diagnosed with invasive ductal cancer. They originally thought it was inflammatory cancer, but it wasn’t. So they thought the rash was due to a blocked lymph gland. Like you, I had chemo, mastectomy, and radiotherapy. They didn’t really know what the rash was, but it had not tested positive for cancer. Still, radiotherapy decided to use a bolus sheet, which is used if the skin needs to be treated. Then, I got my full pathology results. What a shock that was. Turns out that I had a mixed lobular and invasive tumour. The skin was negative. That’s all I can tell you. Sorry if this is of no help. Xx

Hi Cloudier,

Thanks for your reply. Has the rash cleared now and if so what cleared it? Also what is a bolus sheet?

Are you still having ongoing treatment?

Thanks x

Hi, I was initially given antibiotics, and it did go subside a bit, moving downward. But it never completely went away, until I had the full mastectomy. A bolus is looks like a thick, but clear plastic sheet. The radio-oncologist decided to use it at my radiotherapy planning meeting. It’s specifically used to treat skin. She was like my surgeon … not really sure what this was, but let’s treat it as a precaution. She offered me it to me in that way, so I said, yes, ok. 
I am taking Anastrazole and bisphosphonate. 

Ps. I’ve just remembered something. If you follow Liz O’Riordan on Twitter (the breast surgeon who got lobular breast cancer) you see that about a year ago (maybe a bit more) she developed a rash and had a biopsy. It was not cancer, but some kind of allergic reaction to an injection that she had.

Sounds like me. They don't seem to know what it is either but I've already had the mastectomy so maybe they'll just do the radio.

I hope you're doing well after you op and everything. 5hanks for your help.

Take care x

Her rash was on the mastectomy chest wall. 

That's interesting. Thanks, I'll have a look x

Hi Lolly P,

Like you I had invasive lobular cancer in 2021 and mastectomy, chemo and radiotherapy. A couple of months ago I developed a rash on the mastectomy site (I'd had an immediate reconstruction at the time). I was worried that it was cancerous but to cut a long story short after several weeks of antibiotics/iv antibiotics/scans and hospital stays it was concluded it was most likely a very delayed reaction to radiotherapy. They eventually removed the breast implant and I am slowly recovering. The good news is that the biopsy came back clear, so it really was just some sort of acute inflammatory reaction. I hope this is encouraging for you x

Hi Lara1,

Thanks for your reply. Thats very encouraging. Ive got my biopsy results on Friday and I'm feeling a bit more hopeful now.

Really glad things are going well for you and you finally know that it's nothing to worry about. Take care x