Radiotherapy

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Hi all I've done 6 rounds of chemo had surgery now awaiting radiotherapy but seroma on my lymph node keeps refilling and I worried about having radiotherapy to old lymph node site I don't want to get lymphodema has anyone had a problem s xx

  • Hi Fiona_C22 I don't think the radiotherapy causes lymphoma, its the removal of lymph nodes that does that.

  • Thanks for replying I was worried having radiotherapy would increase the risk of me getting lymphodema x

  • It didn't for me, I had full node clearance. I was told it's more about infection due to injury, sunburn anything that can cause inflammation. No Bp or blood tests on that side forever.i have to be careful when gardening.. Ordered some gauntlets. Hope it is uneventful for you. They are very kind and willing to answer any questions. X

  • Bless you Pray idodnt know about be careful garding thou as I love that it keeps me sane aswell as my doggies and horses I ve just had working news that my heart scan is not good and that the her2 target drug may have damaged my heart I was over the moon to get the ok from cancer now this I've been complaining of shortness of breath since chemo no 2 they thought I had a pulmonary embolism so my lungs were scanned and they were OK so it was put down to maybe my covid injection or a reaction to docetaxel which I had several times so now I have to wait for an ecco cardiogram in April I'm so worried I love keeping fit it's another waiting game I just wonder if anyone else has had it happen to them xx

    • Hi Fiona.  So sorry to hear this treadfully sad news  about your heart and am thinking of you.   I was moved by your comments and pray it will not be too serious.   
  • Hi  , just thought I’d pop in as I have lymphoedema, luckily mild, in my radiated breast. It’s a less well known and less publicised side effect of radiotherapy. I don’t think it’s common but it’s listed in the booklet I was given pre radiotherapy, I think published by breastcancernow. It hasn’t occurred to me as a concern until I noticed that my treated breast was bigger than the other, post lumpectomy and rads. I also was finding that any seams in bras caused pitting on that side but not on the other. I raised it at my 10 week post rads oncology review, and was referred to the local lymphoedema service who confirmed it. I manage it mainly with Nordic walking which was recommended and has become a loved hobby. 

    Although I don’t love having it, it’s manageable and I’d still have had the radiotherapy even if I’d known I’d get it. I can’t comment on rads to the lymph nodes as I didn’t have it. I will tag a lovely member,  as she always has useful advice re radiology. Love and hugs, HFxx 

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Thanks Susie I'm really hoping I can sort this Prayxx

  • Aww thank you so much it's one of them if you don't have the treatment your always worried it will come back xx