Abemaciclib & bowel problems

Hi, I'm on cycle 6 & continue to have ongoing issues like yourself, but never any blood. It's good your review is today, like you say definitely mention it as doesnt sound right

Best wishes x 

Thanks for your reply, going forward seems like a one off but will mention it, will be my cycle 3 so hoping my body is adjusting to the medication now, take care & thanks again x

Hi, I’ve had lots of bowel probs and blood a few times - my onc checked it out and it’s a haemorrhoid , so I’ve used cream to treat it. Def worth mentioning to your onc at your appointment - they want to know everything that’s going on with us when we’re on this treatment.

Take care x

Hiya, all ok! Xx

Thanks for your reply, saw consultant yesterday and all ok, same as you so will get some cream! take care xx

That is good news, hopefully easily resolved 

Best wishes x 

Hi Halley

I’m just back from oncologist. Finished chemo, waiting for radiotherapy appointment and been for endocrine appointment.  Am really fed up.  Been told I’m having lettozole and abemaciclib.  Can’t believe the side affects and that I’m going to lose my hair again.  Can anyone give me any more info on this I’m so lost for words that this drug dues all these things after I’ve just finished chemotherapy 

Hiya, I felt exactly like you but please don’t panic, I’m about to start my “3rd” cycle, the first couple of weeks I did suffer with bad diarrhoea but took my lopamide tablets, gradually it started easing off, I kept a diary of what I had eaten, how many times I went and how bad it was, not the nicest thing to note but helped me find what foods etc made it worse, my body is starting to adjust so it has settled down quite a bit, I was so worried about the hair loss/thinning side affect, but up to now ok!  Think like most things they have to mention the range of side affects, think the only other thing I’ve noticed is a very slight taste in my mouth but no where near as bad when I was having chemo, I suppose everyone will be different, I got myself into a bit of state before I started on them and now it’s just my normal routine to take them so please don’t worry yourself, you’ve had enough to deal with, take one day at at a time and let me know how you get on xxx

Hi

Thank you so much for replying.  I’m still confused.  When you say 3rd cycle what do you mean.  I’ve been told I will be taking two tablets a day for two years!  how are you taking yours?  What did they say to you about hair loss. I’m supposed to be taking these pills for two years. Does that mean my hair won’t grow for two more years??  I’m so heartbroken.  I’ve worn the cold cap for 7 months and for what!  I’ve had my Picc line removed. Why, if I have to go for infusions for zoledronic acid and then bloods every three weeks.  

Hiya, yeah I take 2 tablets daily, but when you get your next monthly prescription and start them they call it a “ cycle” so I’m on month 3 of taking them, they went through possible side affects but as yet my newly growing hair is still intact! Think it could cause hair loss or maybe for hair to be slightly thinner when growing, but probably won’t be the case hopefully!  I also have to have a monthly zoladex injection because I’m not in full menopause, oh the joys! How I look at is if I can get through 2 operations, chemo, radiotherapy I can get through taking tablets daily, but it is another scary thing to move onto, please don’t get yourself in a state xxx