Recurrence after 18 years? What does 'suspicious' mean?

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I am waiting for results of a biopsy on a swollen left mastectomy site. I had a full mastectomy in 2004 and reconstruction. After a severe rupture I had the left implant removed but opted to leave the skin flap from LDF rather than have the implant replaced and to avoid any more surgeries. I'd had lots after the original mastectomy so couldn't face any more.

Recently my left 'breast' has swollen and is very hard. I had a scan which showed what they referred to as a suspicious 9cm mass. I have a 2 week wait as of today, to get the results. They also referred to it as probably a recurrence.

Could it have come back after all these years? I'm assuming it's a local recurrence and I'll have the same treatment regime but ultimately will survive. They ruled out infection, lymphodema, scar tissue build up and a recent nasty fall as being possible causes. 

Just need a hand hold I think. 

  • Hello Ftm420,  oh my goodness I am sorry that you are going through this stress again.  I am not an expert but I do know that if you were ER positive you can have recurrences this late.  Even heard of some 30 years out.  I don’t know what they will do for treatment if it is cancer.  Guess you will need lots of tests to see the best way to handle it.  Hoping and praying for good news for you.  
    Hugs too.

    Barbara

    Barbara 

  • Hi  , firstly we will all be here holding your hand virtually during your tests, appointments and any treatment you may need. 

    Re the term ‘suspicious’, I guess it means they can’t rule out cancer at this stage and needed to biopsy it to be sure of what it is. And if they’re talking about recurrence then I guess they think it’s probably cancer. But this is all guesswork on my part, as things stand I think I’d try to prepare for the possibility of cancer again. Lovely if it turns out not to be, but not a total surprise if it is. 
    Sorry you’ve got the horrible waiting for results, you’ll know from last time that it’s easier facing the known than being in limbo. 
    If it is cancer again, do bear in mind that treatments have moved on hugely since your last experience. 
    Sending love and a big virtual hug, HFxx 

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • OK still got 5 days to wait for results but struggling with recurrent blurry vision now. Bit like the aura you get before a migraine, but lasts about 20 mins and then seems to ease off. Happens at least once a day now, having been every other day to start with. 

    Only seems to have started since I went for my biopsy but obv thinking all sorts of things. Typing right now feels strange as I can't see everything and have to keep checking. 

    Just need a hand hold really. 

  • I’m thinking of you … a virtual hand hold. Xx

  • Sorry to hear this, but I know that if it’s not great news that you beat it once and you can beat it again. The best vibes being sent your way xx

  • I am so sorry you are going through this awful, worrying time.  If it is cancer then it is good that it will be dealt with and treatments have moved on in the last 18 years so that would be a positive. The mind is a powerful tool and we all know that it can play havoc with our bodies when it goes into overdrive. Your affected vision could well be down to stress. Try and keep as calm as you can, cry if it helps you release tension. Just be very kind and gentle to yourself. We are all here for you willing you through these next five days. Hope you can feel the love we are all sending you. Xx

  • Mine has come back after 18 years.  I was so naive that I didn't even realise that it could come back after mastectomy.  You might not have to wait so long for your results.  My surgeon usually gets the nurse to call me in for an appointment if they come earlier.  Is it a biopsy result you are waiting for?

  • Hi sorry to read this, I think this is what we all dread. They treated it last time no reason they can't do that again. I have a friend who had it twice, in fact my belly dance teacher as well. They both recovered, one of them is now 79 yrs. 

    Stress causes all kinds of things, affects how the body works. This is heart breaking. I found mine in Oct, it was a suspicious mass, they can't say absolutely but they know what they are looking for. I start radiotherapy next week. Just want to keep living, esp for my son and husband. But also I have more things to do. Dancing in the Prida Parade for one. This group is amazing support, encouraging when we wobble. So much hope and experience. We can do this, I was praying to Archangel Raphael when I went into surgery. I know not everyone believes that. Hope is eternal. Xx

  • Your message brought a smile to my face when I read you prayed to Archangel Raphael. I think we all have a guardian angel and my goodness we all need them when fighting cancer. Glad you have things you are planning to do. I have met several lovely ladies at a local coffee morning for people affected by cancer. Two of them have very serious advanced cancer ( neither lady has breast cancer). Both of them are so positive, we laugh and chat about things.  It is important to look forward but I know how difficult this can be at times.

  • I so like positive stories, my Guardian Angel is called Samelka. I don't know if that is the right spelling. I couldn't survive in this incarnation without divine support. Sense of humour and dancing are my other inspiring activities. Life isn't done with me yet. Xxx