Hi, I was put on Letrazole after diagnosis back in 2021. On one of my fairly recent oncology appointments I happed to mention that I felt stiffness (I had been sitting enjoying lunch with a friend). On standing I struggled to “get going”. My oncologist said “oh that will be the Letrazole …. I can switch you to Anastrazole”. Really, after all this stiffness? Anyway job done and remarkably I’m finding it much better. I mean how are we supposed to monitor ourselves? How do we know what effects to expect? I do read the “leaflets” but they simply cover every scenario. Incidentally, after 5 months of chemo, my oncologist said I could go back on the Letrazole but no-one had told me to stop it for chemo … if they did I would have … he raised his eyebrows and said “well that may have made things more difficult for you to manage”. Really???? J xx
