Trial for less lymph node removal???

Hello there,  from what I have read Her2+ patients are given chemo as real survival benefit. Here is an informative link for you https://www.yalemedicine.org/news/chemo-for-breast-cancer

Take care of yourself and good positive thoughts from me to you. 
Barbars

Thank you so much, Barbara. It's so hard to know what to do. Two months ago I'd never heard of ER + or HER2 or so many of these cancer terms. What a lot we have to learn ! 

I totally understand what you mean.  I am a retired RN so had a basic knowledge of breast cancers but I had so much to learn and continue to learn.  So much has changed in Breast cancer and thank God for the new developments.  Still have a long road to go but with all the clinical trials we will get there.  
Take care.  
Barbara

Hello all,

I had a full axillary clearance last month with a plastic surgery team reattaching lymph nodes to blood vessels to keep the lymph circulating and reduce changes of lymphoedema. I had my surgery at Guys hospital London.

Internet research was not coming up with this procedure but the team told me it's not new and has been happening for 10 years. 

Will see how it goes but of course feeling very positive. Upon follow up surgeon again stated that my chances of lymphoedema was very low due to the procedure.

For me they made the right call. Stage three with 7 affected nodes out of the 16 they ran off with.

Hi Peony078, that’s very interesting about reattaching lymph nodes to blood vessels Would be interesting in reading a paper about how that works. I had fully axillary clearance but didn’t have that done. 
Wishing you all the best for your journey.

Hugs from cuffcake x x x x x

Hello Cuffcake,

thanks for messaging.

I had a look yesterday and again today but can't find anything about this procedure!! So strange, like I imagined it or something. But I clearly remember on my surgery day being so anxious and waiting in my curtained cubicle with all the other surgery patients also in their own cubicles. I was getting visited by so many different medical practitioners just prior to the op. The nurses came by, the anaesthesiologists, then a women from the plastic surgery team to describe the procedure they would do. She was the one that took my anxiety away when she said I was their only patient of the morning so they had lots of time to work on me. Definitely not the usual NHS story! 
I asked her if this was a new procedure as I hadn't heard of it whilst researching scary details online about lymphoedema and she told me they had been doing them for a decade. 
I should have asked my surgeon the exact name of the procedure when we discussed it at my follow up. 
I'll ask the oncologist to tell me what it is called and get back to you.

The only documentation I'm finding seems a different procedure- actual lymph node transplant for women who have lymphoedema issues. 

My surgery date was pushed forward by one day once they realised they had to do the full axillary clearance so they could coordinate the procedure with the plastic surgery team. I swear I'm not making this up. 0;

kind regards,

I had all nodes removed and 1 of 23  was cancerous. I wish I hadn’t lost them all just for one. I would go on the trial knowing what I know now. 

I watched it on YouTube as this gal had severe lymphedema and it helped her.  I don’t remember the name of it but should ce up on the search.  
Barbara

Hi Peony78, I did have a look and managed to find this. It’s very interesting and I will try and keep a copy of this too in my notes as should i develop lymphoedema it may be worth investigating. 
https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/lymphedema-what-are-your-surgical-options

Thanks again for posting that you had this it’s really helpful. If your surgeon or oncologist can confirm the name too that would be great .

Wishing you all the best,

Hugs from cuffcake x x x x x

Hi Gwills, that was lucky only one cancerous one was found. I agree it bid a shame losing so many but I guess it good to be on the safe side. I had all 12 removed and 9 of mine were cancerous. I’m so glad I did as ultrasound, mammogram and physical examination didn’t pick them up. All seemed very normal. 
Wishing you the best for your journey.

Hugs from cuffcake x x x x x