Trial for less lymph node removal???

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Hi all, 

I’ve been told I can possibly take part in a trial that involves less lymph node removal - only removing the one’s infected, rather than the whole lot, as is current practice here. Apparently, this is how they have been doing it in the USA and Holland for a while, but we are a bit behind. 
I’m curious as to whether anyone else has been asked or is involved the trial, and what your thoughts are about it..?

  • Hi KellyCol welcome to the forum.  That sounds interesting and I hadn't heard of this before. 

    As far as I am aware in the UK it is standard practice to take the Sentinel node for testing and if no Cancer is found in that then no further lymph nodes are removed. If the lymph  nodes behind the sentinel node are found to have Cancer cells, then they will proceed to remove as many as are neccesary to get clear margins which may or may not involve taking all the nodes. So I am unclear where the thought has come that we are behind as I understand that to be standard practice in this country but maybe someone else has other experiences that they can share with usi

    gail

     
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  • Yes, that is what I understood was the norm here. I only had the sentinal node removed and as that was clear, no further nodes were touched. 

  • Hi Evajean,  It is the norm here in US too.  If sentinel node clear no others removed.  Total axilla clearance is done but I am going to research it more.  Since I was over 70 my surgical oncologist said he did not need to do sentinel lymph node bx as I was stage 1a and that was the latest research.  However my radiation oncologist did radiate my left lower lymph so go figure. I will send out link when I find info on total axilla clearance.  Happy Sunday.
    Barbara

    Barbara 

    • Hi KellyCol,  I live in US and not too common to have total nodal clearance but does happen if absolutely necessary.  Here is an excellent link about the trial.  Glad you are doing your research.  I am a retired RN and  one thing for sure is do your homework.  Doctors need to know that we want to participate in the decision making process.  
      Barbara

    Barbara 

  • Here is the link.  I accidentally sent it to myself before.  Duh!!

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7811626/
    Barbara

    Barbara 

  • Hi everyone. Perhaps it depends where you are seen.  

    I've just had a lumpectomy at St George's Hospital in Tooting. First sentinel lymph node cancerous, second one clear. 

    My surgeon said that up to a year ago, it was standard practice to remove all lymph nodes if any were found to be cancerous - even if only one. But research has shown that zapping the lymph nodes with radiotherapy is as effective as removing them, and is much more beneficial for the patient. Much less chance of developing lymphoedema or other unpleasant side effects. 

    I thank my lucky stars that I got breast cancer now, not a year ago. 

    Hope that's helpful. Take care, everyone. 

  • I had two positive nodes and my oncologist recommended zapping the rest instead of a full lymph node removal the was may 2021    I had radiotherapy for five days but natead of over three weeks which they have found is just as effective.  This was at the castle hill hospital hull East Riding of yorkshire xx 

  • I had two positive nodes my oncologist recommended radiotherapy as was just as good as full clearance that was may 2021. Castle hill hospital hull East Yorkshire 

  • Looks as if Yorkshire is ahead of London  Blush