Bisphosponate dosage

Yes, please do 

Take care

Julie 

Hi Margaret,  hope you are  doing well in your journey. Your situation  seems very similar  to my mum's. Background  is, she was diagnosed with stage 1a grade 2 HER 2 positive  BC, she had successful lumpectomy wih clear margins and no lymph node involvement,  she then had 12 weekly chemo and 5 days of radiotherapy.  She has the leg injection on going every 3 week for a year for the HER 2.She will be starting the same infusions as you after her last day of radiotherapy tomorrow.  Can  I ask she has obviously  been having heart scans and blood throughout,  she had a  course of tablets  for calcium and vit d, I assume this was for the start of the bisphosphonates but she has receieved a letter to for abdoman  scan, this hasn't been mentioned  at any oncologist  meeting , she has no felt any new symptoms  or the team have not raised any concerns, is this this standar in treatment  did you find ? Thank you take care x

Hi Jodie87 

sorry can’t tag at the minute yes your mums diagnosis and treatment plan sound very similar ..I had MX within 8days so wasn’t diagnosed with Her2 pos til biopsy back after op .

The heart scans are more about the Herceptin and the vitD and calcium are as far as I understand an added bonus for strong bones to help stop BC secondary .

A abdomen scan was never prescribed for me so really have no info on this .

It may be to check liver/ kidney function

Perhaps it depends on chemo type I was on EC X 6

or it may be  new add on to plans because of new research .

Bearing in mind I started in 2019 and have only just finished last month things could have moved on and abdomen scan could now be standard

My advice would be for mum to ring onco secretary asking for phone appointment or letter telling her why ….so she feels more comfortable .

The team at her unit only want the best for mum so will always in my experience respond positively to any queries .

hope this helps 

Thank  you so much for your reply, I can't believe  mum only showed me the letter on Friday night or I would called straight  away , I've spent all weekend  worrying about  why they  would send her for this scan , especially   when  it doesn't seem to be standard for anyone else.  Surely  if they were  concerned  about something they should of informed her. I hope you are doing well ? It had been lovely to talk to you, are you from the North East?

Yes I live in NE in Billingham  north of the Tees .Which area are you in ?

Has mum just had bloods done ? Letter may be in response to that .

I would have  thought they would ring if they were very concerned about something .

Which hospital is she under I’m with North tees and Hartlepool trust which I must admit have been very good throughout treatment . Even when covid arrive just as chemo finished and Herceptin started .

Thank you for asking Im doing fine just curious as to how I’ll feel when all the drugs are out of system . Too be honest mum might find it difficult to get head around Her2 pos but all the added treatment particularly the Herceptin serves to reduce the risk of recurrence