I have been taking exestame but the cancer has mestasicised ion my liver ad is now scattered (had cyber knife treatment for the first tumour in my liver and the ones in my neck) I am now on fulvestrant and alpelsibib. Early days although I know there is no cure
Hello, I am so sorry to read this. Do you have any support at the mo? I believe that there is a separate forum for metastasised breast cancer, but forgive me if I have got that wrong. I recently read about Apelsibib, and that it is being used for people whose tumour had a specific gene. If that’s the case for you, then I am guessing that you have been given a targeting treatment? That sounds promising. I hope you are managing with any side effects. Xx
Hi AEP2983 so sorry to hear this, I hope you're responding ok to the meds. As Cloudier mentioned, there is a group for secondary breast cancer and I've popped the link for it LINK here for you, though it's not as busy as this group, so feel free to use whichever group gives you the most support. Best wishes
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