My first mammogram showed up something and I was asked to go to have another mammogram, biopsy and ultrasound. The wait for the results although not long was a worrying time. When I got them I was told I had invasive ductal carcinoma grade 3 my world seemed to fall sort. I was booked an appointment with my consultant who gave me all the details that my tumor was fulled by oestrogen, progesterone and HER2 positive. I would need surgery, chemo, radiotherapy and hormone therapy. I’ve recently had my lumpectomy and sentinel lymph nodes removed. The results were good clear margins for the lumpectomy but one of the lymph nodes came back positive for cells. I now am booked for another op to remove the lymph nodes. Whilst I’m not too worried about the op I am scared of what the results might be and my mind is in overdrive and every little twinge or strange feeling/ sensation I’m worried it’s already spread
Hello cuffcake2000, sorry that you are dealing with all this and I know that what you are feeling is totally normal. When all this information is given to you the processing takes some time. My situation was different as did not need chemo and not Her2+ but after all my tests I found out I had cancer in both my breasts it was like a truck had hit me. The worry and anxiety can consume you as it did me for awhile. I was incapable of making decisions for a little while and even the surgeon told me it was good that my cancer was not aggressive. I learned that for myself anyway I needed to let my surgeon steer the ship as he really was doing the right thing.
I hope your surgery goes well and all the other treatments too. I am only on Anastrazole now so I did move forward with a gentle push or two.
Barbara
Barbara
Hi Hopefu Barb,
Thank you, yes I have to be guided by my surgeon. She is great and will talk to me and explain everything. If I ask questions she will advise and try to help ease my mind.
Hi cuffcake2020, I'm sorry to hear about your news. I had a therapeutic mammoplasty and sentinel node biopsy in September and the lymph node they removed came back positive also. I totally understand that you are worrying it is spreading or has already spread, I know everyone is going as fast as they can but it's always in my mind that it might be a week or a day too late and it's spreading while I wait for the op to take all the lymph nodes out. By the way I think you're very brave not worrying about the op, I'm quite worried about it, I'm a big baby with general anesthesia and I'm worried about developing lymphoedema afterwards, so I admire you for that,. You sound like a very strong person to me so keep chugging along as best you can. I'd love to think that everyone on this forum going through all our different versions of this will be ok, but I do think that the majority of us will, it's just a bit crap not knowing, for me anyway. Anyway my lovely, I shall be thinking of you and sending lucky vibes across to you wherever you are xx
Hello, I have had a similar experience to you, I had breast conservation surgery and that was followed by a second operation to remove all lymph nodes under my arm. I'm recovering from that now, and await the results, which is the most difficult bit so far! I will need radiotherapy and probably chemo and hormone therapy too. it's good that your breast tumour was removed with good clear margins, that will mean less treatment later I understand. Try and keep positive, take each stage at a time, and fit in doing some nice things while you feel well. I hope all goes well for you xxx
Thank you Bunny7. Yes it’s the waiting that’s the hardest bit. When do you have your op? Sending you good luck. Let us know how things go x x x x x
Hi Lampeter, I wish you good luck for your results and a speedy recovery. Was your tumour large?Did you know what grade your tumour was? Mine was 22mm and a grade 3 which has the faster growing cells.
I agree the scary part is waiting for results. My mine wanders and that I sometimes find difficult to snap out of, especially at night. It’s something we all go through and everyone seems to have such similar worries on that.
Good luck on everything and hope all your treatments go well x x x x x
No probs, it's on Monday. When do you have yours?
Hi Lampetia, I hope your recovery is going well and you get good results. You're totally right about taking it each step at a time. The wait for results is really tough - and this one for you especially, stay as positive as you can (mini meltdowns aside,) you're certainly not on your own xx
The worrying is consuming isn't it. I too struggle at night, I have never slept so poorly or had the most vivid, terrifying dreams as I am now. If being worried is exhausting enough, it catches me out in the evening too!
My diagnosis seemed more positive in that it is grade 2, multi focal (I have two lumps), hormone receptive and HER negative. The MRI showed further incidents in the same breast so a decision for mastectomy was made Thursday of last week, I'm booked in for my procedure on 31st.
I'm glad we have a plan of action, but I just want it done now (although I'm terrified of surgery and just general recovery afterwards - I feel like a huge burden and can't imagine not doing much, or anything, for strictly 2 weeks).
The surgeon said some lymph nodes will be removed and rapid tested during the surgery, if anything looks odd, they'll remove them all in one go. This is such a relief that everything is being done in one go, and in one procedure and then we'll discuss the next steps of treatment from the results of all that.
More waiting! Aargghhh. For every day passing, I'm convinced it could be 'on the move'...
Wishing you all the best for your results x
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