Herceptin after TCHP and surgery. Feels overwhelming

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I'm about to have 5/6 TCHP chemo and have been struggling so much with sickness, being unable to eat and feeling so weak. It's just me and my 9:year old and for 2 weeks out of 3 I feel so awful it's hard to function and hard to believe I'll get through this. I've just found out that after surgery and radiotherapy I will have to do 6 months of herceptin every 3 weeks. I am so scared and low at the thought of this. I wondered if anyone had done this and could tell me how the side effects compare? The thought of not being able to taste and enjoy food for even longer is just too depressing. Food used to be a joy and comfort but now I just dread it. Thank you x

Gilliebean over 2 years ago

Hi Eelpie,

You are nearly there! I finished TCHP at the end of December and it absolutely floored me for the first 2 weeks following treatment, by the 3 rd week I began to feel better again. I finished the 18th Herceptin in September. It is very daunting at the outset but I found the Herceptin injections by themselves not to give me any problems. My sense of taste returned to normal and energy levels recovered slowly. X

Rozalia over 2 years ago

Eelpie, Herceptin injections gave me no more than a runny nose. Basically fine nothing at all like chemo and they work. Must be tough being on your own and finding the energy to care for not only you but your 9 year old. I feel for you, big hug x

Eelpie over 2 years ago in reply to Gilliebean

Thanks so much for your message and encouragement. It is a huge relief to hear such positive experience! It must feel so brilliant to be at the end of it and be slowly recovering your strength. All good wishes xx

Eelpie over 2 years ago in reply to Rozalia

Wow, that sounds totally different and doable! Thanks for taking the time to offer support and hugs. It really helps. I hope you are doing well in your journey xx

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Herceptin after TCHP and surgery. Feels overwhelming